Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 43 results
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6.8.2012
Bounded agency in young carers' lifecourse-stage domains and transitions
Myra Hamilton,
This study investigated young carers experiences and perspectives, outlined the service needs of these carers, and investigated the impacts of their caring role on their education, employment, health, and social life.
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29.4.2023
Navigating community-based aged care services from the consumer perspective
Yuchen Xie, Myra Hamilton, Carmelle Peisah , Kaarin J Anstey , Craig Sinclair , UNSW Ageing Futures Institute; School of Psychology, University of New South Wales; Neuroscience Research Australia; Discipline of Psychiatry, University of New South Wales; Specialty of Psychiatry, University of Sydney.
This study investigated the experiences of older adults taking a more active role in navigating the aged care system.
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1.6.2023
Housing issues for people with disability, older people and carers in NSW
NSW Ageing and Disability Commission
This article is about the housing and homelessness crisis in NSW, Australia, with a specific focus on the challenges faced by older people, people with disabilities, and carers in regard to securing appropriate housing.
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13.9.2023
A case for an extended unpaid carer leave entitlement?
Productivity Commission
This is the final report of the Productivity Commission inquiry into the economic and social impacts of allowing informal carers to take extended unpaid leave from their work to care for older people who are frail and living at home.
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1.9.2023
Hidden Gems
ShinEn Wong, Shannon Harvey, Megan Frost, Glenn Althor
This report reflects on progress made since Relationships Australia introduced their 'Let's Talk Elder Mediation and Support Service' in response to the high rates of people aged 65 and older experiencing physical, psychological, financial or sexual abuse in Australian communities.
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1.6.2021
Carers of older Australians
Jeromey Temple, Briony Dow, Leona Kosowicz
This study finds that among carers of older Australians, a relatively high proportion (39%) cite unmet needs in their carer role, including a need for financial support, physical assistance, emotional support, improvement in carer health and more respite care.
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9.9.2021
Choosing and managing aged care services from afar
Kate M. Gunn, Julie Luker, Rama Ramanathan, Xiomara Skrabal Ross, Amanda Hutchinson, Elisabeth Huynh, Ian Olver
This research aims to identify the factors that influence caregivers' decisions about the aged care providers they select for their elder relatives when caring from a distance and what they value once they have engaged a service.
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1.5.2022
Factors contributing to the mental health outcomes of carers during the transition of their family member to residential aged care
Vera Camões-Costa , Jayasree Loganathan, Chris Barton, Alana Hewitt, Xiaoping Lin, Bianca Brijnath
This article sought to identify factors influencing adverse mental health outcomes among family carers following the transition of an older family member to a residential aged care facility (RACF).
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9.12.2023
Caring for people with dementia from culturally and linguistically diverse backgrounds in nursing homes
Minah Amor Gaviola, Mieko Omura, Kerry Jill Inder, Amanda Johnson
This paper discusses care provision amongst people with dementia from culturally and linguistically diverse (CALD) backgrounds in nursing homes.
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23.2.2021
What are the shared decision-making experiences of adult children in regard to their parent/s' health care in residential aged care facilities?
Ainslie Monson, Joyce Hendricks, Deborah Sundin
This paper looked at the shared decision-making (SDM) experiences of adult children in relation to their older parent's health care in residential aged care facilities (RACF).
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20.5.2024
Navigating multiple and complex systems of care and support with ageing family carers from multicultural backgrounds in Australia
Rohini Balram, Daniel Doh, Nichole Georgeou
This paper highlights the challenges faced by culturally and racially marginalised families face when seeking access to disability and aged care services and support.