Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 24 results
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11.7.2019
Understanding rural caregivers’ experiences of cancer care when accessing metropolitan cancer services
Anna Ugalde, Sarah-May Blaschke, Anna Boltong, Penelope Schofield, Sanchia Aranda, Jo Phipps-Nelson, Suzanne K. Chambers, Meinir Krishnasamy, Patricia M. Livingston
This study explored the experiences of carers of people with cancer who reside in rural Australia. Specifically, this study explored this cohort's experience in accessing metropolitan cancer health services.
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13.2.2019
Identifying priorities for cancer caregiver interventions
Sarah-May Blaschke, Sylvie Lambert, Patricia M. Livingston, Sanchia Aranda, Anna Boltong, Penelope Schofield, Suzanne K. Chambers, Meinir Krishnasamy, Anna Ugalde
This study investigated the best ways in which caregivers for people with cancer can be supported.
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1.1.2023
Caregiver fear of cancer recurrence
Phyllis Butow, Kyra Webb, Louise Sharpe, Haryana Dhillon, Robert Zachariae, Nina Moller Tauber, Mia Skytte O'Toole, Joanne Shaw
Although fear of cancer recurrence (FCR) is experienced by both cancer survivors and caregivers, less is known about caregiver FCR. This study compared survivor and caregiver FCR levels, as well as the relationship between caregiver FCR and depression/anxiety.
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21.9.2023
Disrupted Identities, Invisibility and Precarious Support
Jane Ussher, Kimberley Allison, Samantha Ryan, Janette Perz , The Out with Cancer Study Team
This study examined LGBTQI adolescents and young adults' (AYA) experiences of cancer and cancer care to understand existing health disparities.
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13.9.2024
Supporting Carers: Study Protocol of a Meta-Review of Psychosocial Interventions for Carers of People With Cancer
Carers remain undersupported with a lack of dedicated, effective, evidence-based programs. We will conduct a meta-review to synthesize this evidence and determine the state of science in this field.
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17.10.2024
Adapting a Preparatory Skills-Building Programme for Carers of People With Cancer Through Co-Design: The iCanSupport Project
Existing programs often focus on mental health but overlook practical support for cancer carers. The iCanSupport project adapted existing programs using feedback from carers and healthcare professionals, making them more relevant to carers’ specific needs.