Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 84 results
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18.4.2024
Beautiful but fragile
Kath Sellick, Agnes Girdwood, Bronwyn Robinson, Lisa Romanin, Jennifer Davidson, Lorna Downes
This study explored the experiences of family/carer Lived Experience (LE) workers in Victorian mental health services, focusing on how their personal caregiving experiences intersect with their roles and what is needed for sustainability.
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31.5.2024
The impact of caregiving on the roles and valued activities of stroke carers: A systematic review of qualitative studies
Melissa Jammal , Gregory S Kolt, Karen P. Y. Liu, Nariman Dennaoui , Emma S. George
This systematic review explores the experiences of informal caregivers of stroke survivors, focusing on how carers impacts their roles, activities, and overall wellbeing.
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15.10.2024
Healthcare professionals’ perceptions on providing support to informal carers within stroke care
Melissa Jammal , Gregory S Kolt, Karen P. Y. Liu, Nariman Dennaoui , Emma S. George
This article explores the perspectives of healthcare professionals on supporting informal carers of stroke survivors.
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28.8.2024
A systematic review and meta-analysis of randomized controlled trials to reduce burden, stress, and strain in informal stroke caregivers
Melissa Jammal , Gregory S Kolt, Karen P. Y. Liu, Justin M Guagliano, Nariman Dennaoui , Emma S. George
This systematic review and meta-analysis examines the effectiveness of interventions aimed at reducing burden, stress, and strain among informal stroke caregivers.
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18.10.2024
The importance of recognition
Myra Hamilton, Hugh Bainbridge, Marian Baird, Nate Zettna, Lukas Hofstätter , Sarah Judd-Lam, Kate O’Loughlin
Carers frequently observe that their caring role is undervalued. This study provides new knowledge on the positive outcomes of carer recognition for carers’ social and emotional well-being and the sustainability of care relationships. Further, it provides evidence on how carer recognition mediates the relationship between adverse experiences of carers, and poor social and emotional outcomes. The findings suggest that reducing adverse experiences in employment, service navigation and social relationships are points of intervention for enhancing perceptions of recognition, and in turn, improving carer outcomes.
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16.12.2024
Young adults recount their experiences as young carers in Australia
Owen Walker, Richard Moulding,
This study explores the experiences of young carers, an often-overlooked group within Australian youth.
Findings reveal that providing care during childhood or adolescence is both challenging and transformative, with lasting effects into young adulthood. -
31.1.2025
Moments of Care: Perceptions of Young Carers and Day-to-Day Well-Being
Melinda S. Kavanaugh, Matthew J. Zawadzki, Kayla T. Johnson, Miranda R. Boville , Healthcare
This article explores how young carers in the U.S., experience caregiving moments while supporting a family member with amyotrophic lateral sclerosis (ALS).
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1.2.2025
The Death Literacy Index:
Kristine Van Dinther , Kerrie Noonan, Rosemary Leonard , Sara Javanparast
This study emphasises the value of experiential knowledge among grieving carers, advocating for compassionate community networks where carers can share experiences and receive support, particularly after their loss.