Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 190 results
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13.9.2024
Supporting Carers: Study Protocol of a Meta-Review of Psychosocial Interventions for Carers of People With Cancer
Lukas Hofstätter ,
Carers remain undersupported with a lack of dedicated, effective, evidence-based programs. We will conduct a meta-review to synthesize this evidence and determine the state of science in this field.
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11.9.2024
Empowering carers when systems are complex
Carers NSW, Carer Knowledge Exchange
The CKE Interactive Webinar 8 focused on empowering carers in complex systems and improving service access. This paper summarises the themes discussed at the webinar by panellists and by participants in breakout rooms.
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17.10.2024
Adapting a Preparatory Skills-Building Programme for Carers of People With Cancer Through Co-Design: The iCanSupport Project
Lukas Hofstätter ,
Existing programs often focus on mental health but overlook practical support for cancer carers. The iCanSupport project adapted existing programs using feedback from carers and healthcare professionals, making them more relevant to carers’ specific needs.
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28.10.2024
Generation Survey - What Young Australia Thinks
Ben Edwards, Kate Doery, Jessica Arnup, Intifar Chowdhury, Daniel Edwards, Kylie Hillman
The Generation Study is national study led by the Australian National University (ANU) where students are surveyed about to better understand contemporary experiences of young Australians both within the school environment and outside education. The ten-year study aims to capture trends about career interests and post-school plans.
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31.5.2024
The impact of caregiving on the roles and valued activities of stroke carers: A systematic review of qualitative studies
Melissa Jammal , Gregory S Kolt, Karen P. Y. Liu, Nariman Dennaoui , Emma S. George
This systematic review explores the experiences of informal caregivers of stroke survivors, focusing on how carers impacts their roles, activities, and overall wellbeing.
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15.10.2024
Healthcare professionals’ perceptions on providing support to informal carers within stroke care
Melissa Jammal , Gregory S Kolt, Karen P. Y. Liu, Nariman Dennaoui , Emma S. George
This article explores the perspectives of healthcare professionals on supporting informal carers of stroke survivors.
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16.12.2024
Young adults recount their experiences as young carers in Australia
Owen Walker, Richard Moulding,
This study explores the experiences of young carers, an often-overlooked group within Australian youth.
Findings reveal that providing care during childhood or adolescence is both challenging and transformative, with lasting effects into young adulthood.