Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 51 results
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20.5.2022
Use of parental disability trajectories to identify adolescents who are young carers
Tania L. King, Marissa Shields, Martin O’Flaherty, Anne Kavanagh, Matthew J. Spittal
This study revealed that parental disability may be an important way for service providers to better identify and subsequently support young carers.
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3.5.2013
Carer and service providers' experiences of individual funding models for children with a disability in rural and remote areas
Angela Dew, Kim Bulkeley, Craig Veitch, Anita Bundy, Michelle Lincoln, Jennie Brentnall, Gisselle Gallego, Scott Griffiths
This article explores the experiences of carers and services providers with individual funding models for children with a disability living in rural and remote areas.
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27.5.2014
Rural carers of people with disabilities
Angela Dew, Vicki Happ, Kim Bulkeley, Anita Bundy, Michelle Lincoln, Gisselle Gallego, Jennie Brentnall, Craig Veitch
This study explores a decision that rural carers often face: whether to move to a larger metropolitan centre to access support services or to remain living in a rural area.
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9.8.2022
People with disability and carers at more risk of homelessness, PTSD after floods
Ivy Shih
Inclusion of carers and people living with a disability in both flood preparedness and recovery efforts is urgently needed in Australia, with flood events compound existing physical and mental health issues.
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2.6.2023
How well prepared are we for disaster?
Tonia Crawford, Ivy Yen, Kuo-yi Jade Chang, Gwynnyth Llewellyn, Dale Dominey-Howes, Michelle Villeneuve
During disasters, carers often have the responsibility of assisting the person they care for, as well as ensuring their own safety. This article explores the impact of disasters on carers of people with disability.
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1.2.2023
Disability and access to the NDIS in rural Australia
National Rural Health Alliance
This factsheet highlights how people with disability living in rural, regional and remote Australia experience challenges in accessing the support they need, with fewer providers and less workers available to deliver care.
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1.6.2023
Housing issues for people with disability, older people and carers in NSW
NSW Ageing and Disability Commission
This article is about the housing and homelessness crisis in NSW, Australia, with a specific focus on the challenges faced by older people, people with disabilities, and carers in regard to securing appropriate housing.
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19.8.2023
The National Disability Insurance Scheme and parenting support for families of children with developmental disability
Trevor G Mazzucchelli, Bruce J Tonge, Sharon Dawe, Avril V Brereton, Catherine Wade, Kirsten Baird-Bate
The article discusses the importance of providing parenting support for children with neurodevelopmental disabilities (including autism, intellectual disability and foetal alcohol spectrum disorder) under the Australian National Disability Insurance Scheme (NDIS).
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Parent perspectives on School Can't: implications for health, welfare, disability and education
Louise Rogers, Tiffany Westphal
This report details the findings of a survey (conducted in December 2022 of 441 parents/carers who were supporting students who were experiencing school attendance difficulties.
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7.12.2023
Working together to deliver the NDIS
Independent Review of the National Disability Insurance Scheme
This final report of the independent review of the National Disability Insurance Scheme (NDIS) includes 26 recommendations with 139 actions to change the system that supports people with disability.