Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 61 results
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1.10.2023
Why are siblings important to achieving disability policy goals in Australia?
This white paper outlines an evidence-based approach to understanding why siblings of people with disability should be considered a critical partner in achieving the priorities of Australia’s Disability Strategy 2021-2031.
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Impact of the Minds Together program for family and friends supporting someone with their mental health
Elloyse Fitzgeraldson, Penny Reeves, Frances Kay-Lambkin, Xenia Dolja-Gore, Finn Hamilton, Sally Fitzpatrick , Everymind
In 2018, Everymind implemented the Minds Together support programs specifically for family and friends of a person with depressive or anxiety symptoms.
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20.5.2024
Navigating multiple and complex systems of care and support with ageing family carers from multicultural backgrounds in Australia
Rohini Balram, Daniel Doh, Nichole Georgeou
This paper highlights the challenges faced by culturally and racially marginalised families face when seeking access to disability and aged care services and support.
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27.2.2014
The recovery framework as a way of understanding families' responses to mental illness
Robert Bland
Personal recovery is a mental health principle which suggests that individuals own and are responsible for their own recovery. In this framework, the role of the family is more in recovery-oriented support.
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19.7.2021
Relational recovery for mental health carers and family
Robert Bland, Jastine Barratt, Rowena Jonas
This study aimed to explore the relevance of a family-based recovery framework developed by the authors that uses the CHIME (Connectedness, Hope, Identity, Meaning and Purpose, and Empowerment) tenants of recovery from the perspectives of the consumer, the family role of providing recovery-oriented support and own recovery.
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8.7.2024
Setting priorities for mental health family carer research and advocacy in Australia
This article reports on the recent priority agenda for mental health family carer research and advocacy developed by a new Australia-based network of stakeholders and researchers with lived and living experience of supporting someone experiencing mental distress.
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28.5.2024
Strategies adopted by informal carers to enhance participation in daily activities for persons with dementia
Gemma Burridge, Rosalind Bye, Carmen Amato, David Basic, Danielle Ni Chróinín, Susanna Hill, Kaitlin Howe, Karen P.Y.Liu
This qualitative study aimed to explore the strategies carers use to assist individuals with dementia in completing daily activities.
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1.9.2024
Integrating community and family aged care
Shuang Liu, Nancy A. Pachana, Kumchong Lee, Mary Ann Geronimo, Sunil Bhar
Based on the findings from 100 interviews with carer, we make six recommendations for service providers and policymakers in the aged care sector to consider implementing in practice and policymaking to support family carers of older CALD people and older CALD community in Australia.
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14.9.2024
Sequential mediation model of social support, care burden, and internalized stigma among family function and depression in caregivers of patients with schizophrenia
Teng Zhang, Ximei Wang, Bo Yang, Minsong Li, Liming Wang, Ce Yang, Chuanwen Fu, Zhengxu Li, Xuehui Zhang, Yangdong Guo, Nishang Zhang, Ensheng Pu, Jianzhong Yin , Social Psychiatry and Psychiatric Epidemiology
This article explores how social support, care burden, and internalised stigma affect family carer of patients with schizophrenia in southwest China.
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8.9.2024
Mixed-Methods Consultation Study of Family and Friends Supporting a Paramedic Experiencing Mental Ill-Health or Suicidal Distress
Sally Fitzpatrick, Caitlin Mitchell, Lyndon Bell, José Cuenca, Philippa Ditton-Phare, Kristen Vallender, Elloyse Fitzgeraldson
This study explores carers’ experiences of providing support to paramedics experiencing mental ill-health or suicidal distress, and their requirements for online support programs