Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 102 results
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20.12.2023
Person-centred integrated care for people living with Parkinson's, Huntington's and Multiple Sclerosis
Sandra Bartolomeu-Pires, Dorit Kunkel, Christopher Kipps, Nick Goodwin, Mari C. Portillo
This review aimed to research whether integrated care improves outcomes for people living with long term neurological conditions. In addition, this article also seeks to clarify what characterises successful interventions.
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21.9.2023
Disrupted Identities, Invisibility and Precarious Support
Jane Ussher, Kimberley Allison, Samantha Ryan, Janette Perz , The Out with Cancer Study Team
This study examined LGBTQI adolescents and young adults' (AYA) experiences of cancer and cancer care to understand existing health disparities.
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1.5.2022
Factors contributing to the mental health outcomes of carers during the transition of their family member to residential aged care
Vera Camões-Costa , Jayasree Loganathan, Chris Barton, Alana Hewitt, Xiaoping Lin, Bianca Brijnath
This article sought to identify factors influencing adverse mental health outcomes among family carers following the transition of an older family member to a residential aged care facility (RACF).
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18.12.2023
Stakeholder perspectives on short-stay joint replacement programs
Ilana Ackerman, Danielle Berkovic, Sze-Ee Soh, Justine Naylor, Peter Lewis, Richard de Steiger, Rachelle Buchbinder, Zanfina Ademi, Patrick Vallance, Ian Harris
This study aimed to investigate the perspectives of stakeholder groups, including carers of people who had had a recent hip or knee replacement, on short-stay joint replacement programs.
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5.3.2024
Translating policy into practice by engaging older persons and their carers as co-researchers
Hannah Beks, Suzanne Clayden, Emma West, Olivia King, Laura Alston, Sue Williams, Alesha Sayner, Catherine Huggins, Kevin McNamara, Ellen Gaffy , Deeble Institute for Health Policy Research
This briefing calls for the greater involvement of older persons and their carers in participatory health research as 'co-researchers' to develop better solutions.
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11.3.2024
Evaluating a targeted support program for mental health carers
Elloyse Fitzgeraldson, Sally Fitzpatrick, Joshua Dizon, Frances Kay-Lambkin
This study researched the effects of having a targeted online support program, titled 'Minds Together' for carers of a person with mental health concerns.
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23.2.2021
What are the shared decision-making experiences of adult children in regard to their parent/s' health care in residential aged care facilities?
Ainslie Monson, Joyce Hendricks, Deborah Sundin
This paper looked at the shared decision-making (SDM) experiences of adult children in relation to their older parent's health care in residential aged care facilities (RACF).
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11.3.2024
Family members’ experiences of ‘living well’ with a family member with depression
Amanda Cole, Julie Ann Pooley, Vivien Kemp, Lisa Whitehead
The aim of this study was to explore how family members describe and perceive the experience of living well with a family member living with depression.
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Impact of the Minds Together program for family and friends supporting someone with their mental health
Elloyse Fitzgeraldson, Penny Reeves, Frances Kay-Lambkin, Xenia Dolja-Gore, Finn Hamilton, Sally Fitzpatrick , Everymind
In 2018, Everymind implemented the Minds Together support programs specifically for family and friends of a person with depressive or anxiety symptoms.