Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 37 results
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24.5.2006
An exploratory study of GP awareness of carer emotional needs in Western Australia
Caroline Bulsara, Noreen Fynn
This article reports on an exploratory telephone survey conducted by Carers Western Australia to assess the awareness of carer needs and issues of general practitioners (GPs) in Western Australia and the way in which GPs perceive their role in providing information and support to carers.
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1.10.2021
Codesigning a supportive online resource for Australian cancer carers
Sharnel Miriam Perera, Clare O’Callaghan, Olinda Santin, Cassandra Beer, G Prue, Katherine Lane, Gerard G Hanna, Penelope Schofield, Anna Ugalde
This study aimed to assist in the co-design process of creating a website to provide information and support to cancer carers in Australia by collecting data on carers' experiences and perspectives.
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10.10.2019
“I’m trying to stop things before they happen”
Bronwen Merner, Sophie Hill, Michael Taylor
This study investigated carer involvement when a care recipient is in hospital. Specifically, the study looked at the experience of carers of adult patients and how they contributed to the safety of the care recipient while they were in hospital.
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1.9.2022
Review of remote and online learning experiences during COVID-19
Andrew Wade, Anne Walstab, Esther Doecke, Melissa Tham , Australian Education Research Organisation
This report explores the effectiveness of online learning methods used during the COVID-19 pandemic to support student outcomes. The report also explores the experiences of remote learning for Australian families of students with a disability.
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1.1.2023
Caregiver fear of cancer recurrence
Phyllis Butow, Kyra Webb, Louise Sharpe, Haryana Dhillon, Robert Zachariae, Nina Moller Tauber, Mia Skytte O'Toole, Joanne Shaw
Although fear of cancer recurrence (FCR) is experienced by both cancer survivors and caregivers, less is known about caregiver FCR. This study compared survivor and caregiver FCR levels, as well as the relationship between caregiver FCR and depression/anxiety.
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21.9.2023
Disrupted Identities, Invisibility and Precarious Support
Jane Ussher, Kimberley Allison, Samantha Ryan, Janette Perz , The Out with Cancer Study Team
This study examined LGBTQI adolescents and young adults' (AYA) experiences of cancer and cancer care to understand existing health disparities.
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18.12.2023
Stakeholder perspectives on short-stay joint replacement programs
Ilana Ackerman, Danielle Berkovic, Sze-Ee Soh, Justine Naylor, Peter Lewis, Richard de Steiger, Rachelle Buchbinder, Zanfina Ademi, Patrick Vallance, Ian Harris
This study aimed to investigate the perspectives of stakeholder groups, including carers of people who had had a recent hip or knee replacement, on short-stay joint replacement programs.