Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 163 results
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1.7.2022
Exposure to risk and experiences of river flooding for people with disability and carers in rural Australia
Jodie Bailie, Veronica Matthews, Ross Bailie, Michelle Villeneuve, Jo Longman
This article explores the experiences of people with a disability and their carers during and following a flooding event.
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24.5.2006
An exploratory study of GP awareness of carer emotional needs in Western Australia
Caroline Bulsara, Noreen Fynn
This article reports on an exploratory telephone survey conducted by Carers Western Australia to assess the awareness of carer needs and issues of general practitioners (GPs) in Western Australia and the way in which GPs perceive their role in providing information and support to carers.
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3.12.2013
The experiences of being close relatives and informal carers of mentally ill Iraqi refugees
Camilla Blach Rossen, Elsebeth Stenager, Niels Buus
This article explore the experiences of carers of mentally ill Iraqi refugees. Carers who were involved in this study felt isolated, which was exacerbated by their culture-bound obligations and stigma.
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29.10.2020
Promoting well-being among people with early-stage dementia and their family carers through community-based group singing
Sophie Lee, Desmond O’Neill, Hilary Moss
This study explored how a community-based group singing intervention impacted the wellbeing of people with early-stage dementia and their family carers.
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6.8.2012
Bounded agency in young carers' lifecourse-stage domains and transitions
Myra Hamilton,
This study investigated young carers experiences and perspectives, outlined the service needs of these carers, and investigated the impacts of their caring role on their education, employment, health, and social life.
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25.7.2020
Measuring carer outcomes in an economic evaluation
Lidia Engel, Stacey Rand, Renske Hoefman, Jessica Bucholc, Cathrine Mihalopoulos, Anne Muldowney, Nikki McCaffrey, Anna Ugalde
This study investigated the overlapping or complementary aspects of carer-related economic evaluation measures including the Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer), Carer Experience Scale (CES), and Care-Related Quality of Life (CarerQoL).
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1.11.2020
Head-to-head comparison of the psychometric properties of 3 carer-related preference-based instruments
Nikki McCaffrey, Jessica Bucholc, Stacey Rand, Renske Hoefman, Anna Ugalde, Anne Muldowney, Cathrine Mihalopoulos, Lidia Engel
This study investigated the measurement properties of preference-based instruments that aim to assess the impact of providing informal care on a carers social life and their caring experience.