Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 163 results
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22.1.2018
Australian family carer responses when a loved one receives a diagnosis of Motor Neurone Disease
Margaret O'Connor, Samar Aoun, Lauren Breen
This paper describes the qualitative data from a large Australian survey of family carers of people with MND, to ascertain their experiences of receiving the diagnosis.
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11.1.2018
I just can't please them all and stay sane
Gemma Tatangelo, Marita McCabe, Ashley Macleod, Anastasia Konis
Examining the relationship between family dynamics and adult child caregiver distress, this study seeks to better understand the experience of caring for an older relative with dementia and address problematic family dynamics in the caring context.
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3.9.2011
Primary caregivers’ satisfaction with clinicians’ response to them as informal carers of young people with first-episode psychosis
Terence V McCann, Dan I Lubman, Eileen Clark
This article aims to explore carers’ experiences of mental health nurses and other mental health clinicians in regard to how they respond to them as carers of young people with first-episode psychosis.
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10.11.2020
Rethinking respite in Australia
Lyn Phillipson, Keryn Johnson, Elaine Fielding, Elizabeth Cridland, Danika Hall, Christine Neville, Helen Hasan
This article explores ways in which uptake of respite services can be improved among carers of people with dementia and reveals that more active support is needed to address carer decline, as opposed to passive respite information, which is often insufficient.
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15.12.2017
Perceived needs of carers of people with psychosis
Abner Weng Cheong Poon, Lynette Joubert, Carol Harvey
This article takes a deeper look at the needs of carers for people with psychosis based on a series of semi-structured interviews with 98 carers recruited in the Australian prevalence study of psychosis.
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6.5.2021
Entering into a system of care
Rachel Quigley, Michele Foster, Desley Harvey, Carolyn Ehrlich
As Australia’s population ages, the need for informal care to assist older adults to remain living at home increases and now plays a crucial role in healthy ageing. However, existing systematic burdens create disparities in support received for carers and care recipients.
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2.1.2019
An economic evaluation of a telephone outcall intervention for informal carers of cancer patients in Australia
Scott Richards-Jones, Cathrine Mihalopoulos, Leila Heckel, Kate M. Gunn, Marcus Tan, Patricia M. Livingston
This study looks at the economic efficacy of proactive telephone outcall intervention as a method of improving health outcomes for carers of cancer patients.