Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 29 results
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7.12.2020
'Absent voices'
Karen Hutchinson, Frances Rapport, Geoffrey Herkes, Andrew Bleasel, Armin Nikpour, Chong Wong, Carol Ireland, Lukas Hofstaetter, Sanjyot Vagholkar, Stephanie Kain, Tayhla Ryder, Jeffrey Braithwaite
This article explores the experiences of those living with parental refractory epilepsy and their family members in order to address current evidence-gaps in research.
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11.7.2019
Understanding rural caregivers’ experiences of cancer care when accessing metropolitan cancer services
Anna Ugalde, Sarah-May Blaschke, Anna Boltong, Penelope Schofield, Sanchia Aranda, Jo Phipps-Nelson, Suzanne K. Chambers, Meinir Krishnasamy, Patricia M. Livingston
This study explored the experiences of carers of people with cancer who reside in rural Australia. Specifically, this study explored this cohort's experience in accessing metropolitan cancer health services.
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29.4.2023
Navigating community-based aged care services from the consumer perspective
Yuchen Xie, Myra Hamilton, Carmelle Peisah , Kaarin J Anstey , Craig Sinclair , UNSW Ageing Futures Institute; School of Psychology, University of New South Wales; Neuroscience Research Australia; Discipline of Psychiatry, University of New South Wales; Specialty of Psychiatry, University of Sydney.
This study investigated the experiences of older adults taking a more active role in navigating the aged care system.
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1.6.2021
Carers of older Australians
Jeromey Temple, Briony Dow, Leona Kosowicz
This study finds that among carers of older Australians, a relatively high proportion (39%) cite unmet needs in their carer role, including a need for financial support, physical assistance, emotional support, improvement in carer health and more respite care.
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11.3.2024
Evaluating a targeted support program for mental health carers
Elloyse Fitzgeraldson, Sally Fitzpatrick, Joshua Dizon, Frances Kay-Lambkin
This study researched the effects of having a targeted online support program, titled 'Minds Together' for carers of a person with mental health concerns.
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7.11.2023
‘Everything would have gone a lot better if someone had listened to me’
Laura Hayes, Heather McIntyre, Mark Loughhead, Caroline Allen, Dean Barton-Smith, Brooke Bickley, Louis Vega, Jewels Smith, Ursula Wharton, Nicholas Procter
This study looks at Australians with a psychosocial disability (PSD) and a National Disability Insurance Scheme (NDIS), and their carers, and their access to emergency care due to their fluctuating conditions or when support has become insufficient.