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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

    FAQs
  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 23 results

  • Recognition and inclusion, Inclusion in decision making

    1.12.2023

    Mission Australia Youth Survey 2023

    Mission Australia

    This report is the largest online annual survey of young people in Australia, with insights which are important for all those parenting and living alongside young people, teachers and school administrators, sector colleagues, support service staff, businesses and decision-makers.

    Children and young people Survey
    View
  • Planning and transitions, Planning for emergencies

    Emergency preparedness survey of Australians with disability, informal carers and general population

    Collaborating 4 Inclusion

    Disability Natural disasters
    View
  • Caring and society, Carer statistics

    16.10.2023

    2022 National Carer Survey

    Carers NSW

    Led by Carers NSW, the 2022 National Carer Survey has expanded the evidence base regarding carers' experiences and support needs. The survey asked carers across Australia about their caring roles, their experiences with services for themselves and the people they care for, their experiences with paid work, and their health and wellbeing.

    Survey Workforce participation Finances Carer recognition Carer support Carer wellbeing
    View
  • Caring and society, Carer statistics

    4.7.2024

    Disability, Ageing and Carers, Australia

    Australian Bureau of Statistics

    Quantitative data Survey Carers
    View
  • Developing skills and knowledge, Self-advocacy

    6.12.2024

    ‘Is There Anything Else You’d Like to Tell Us About Your Experience?’

    Giselle Newton, Emma Kirby, Lukas Hofstätter , Sarah Judd-Lam, Louisa Smith, Brendan Churchill, Iva Strnadova, Christy E. Newman

    Open survey responses are a suitable tool for "sociological listening".

    Survey Methodology Carer inclusion Research
    View
  • Income and paid work, Retirement and superannuation

    25.9.2024

    Older people’s financial wellbeing and preferences: Findings from the 2024 National Seniors Social Survey

    Retirement Superannuation Financial wellbeing Older people
    View
  • Specific groups of carers, Young carers

    28.10.2024

    Generation Survey - What Young Australia Thinks

    Ben Edwards, Kate Doery, Jessica Arnup, Intifar Chowdhury, Daniel Edwards, Kylie Hillman

    The Generation Study is national study led by the Australian National University (ANU) where students are surveyed about to better understand contemporary experiences of young Australians both within the school environment and outside education. The ten-year study aims to capture trends about career interests and post-school plans.

    Young carers Survey Carer wellbeing
    View
  • Recognition and inclusion, Carer recognition

    18.10.2024

    The importance of recognition

    Myra Hamilton, Hugh Bainbridge, Marian Baird, Nate Zettna, Lukas Hofstätter , Sarah Judd-Lam, Kate O’Loughlin

    Carers frequently observe that their caring role is undervalued. This study provides new knowledge on the positive outcomes of carer recognition for carers’ social and emotional well-being and the sustainability of care relationships. Further, it provides evidence on how carer recognition mediates the relationship between adverse experiences of carers, and poor social and emotional outcomes. The findings suggest that reducing adverse experiences in employment, service navigation and social relationships are points of intervention for enhancing perceptions of recognition, and in turn, improving carer outcomes.

    Carer recognition Survey Carer wellbeing Support services
    View
  • Specific groups of carers, Aboriginal and Torres Strait Islander carers

    16.10.2024

    2024 National Carer Survey Factsheet: First Nations Carers

    , Carers NSW

    The Carers NSW 2024 National Carer Survey was conducted from 1 June to 31 July 2024 and received 10,096 valid responses of carers from all across Australia.

    Carer support Survey Carer recognition Carer wellbeing Aboriginal and Torres Strait Islander
    View
  • Specific groups of carers, Caring for someone with autism

    2.4.2025

    National Autism Parent/Carer Survey 2025 Report

    Autism Awareness Australia , Autism Awareness Australia

    View
  • Caring and society, Carer statistics

    17.4.2025

    2024 National Carer Survey Summary Report

    Carers NSW

    This summary report provides an overview of national findings from the 2024 National Carer Survey regarding carers’ economic and social needs, caring relationships, carers’ experiences accessing services, and their health and wellbeing as well as diverse caring experiences.

    Aged care NDIS Mental health Carer recognition Carer needs Carer support Survey
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.