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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 28 results

  • Income and paid work, Support at work

    1.1.2017

    Caregiving responsibilities for a child, spouse or parent

    Hugh Bainbridge, Timothy Broady

    This study investigated how a care recipient's level of independence impacts a carer's wellbeing and career development.

    Carer-inclusive workplaces Carer wellbeing Financial wellbeing Flexible work Open access Peer-reviewed journal article
    View
  • Specific groups of carers, Caring for someone with dementia

    18.1.2018

    Caring for a family member or friend with dementia at the end of life

    Timothy Broady, Freya Saich, Tom Hinton

    This article explores the experiences of carers who are providing end-of-life care to a family member or friend with dementia.

    End of life care Dementia Peer-reviewed journal article Palliative care
    View
  • Carer health and wellbeing, Mental health

    30.6.2015

    “How can I take a break?”

    Timothy Broady, Katherine Stone

    This article focuses on the experiences of carers who care for care recipients with mental health issues. The study found that carers of people with mental health suffered poor mental health themselves.

    Mental health carers Mental health Wellbeing Support services
    View
  • Specific groups of carers, Caring for someone at the end of life

    12.11.2020

    Carers’ experiences of end-of-life care

    Timothy Broady

    This article explores various practical and emotional challenges that family and friend carers may face when the person that they care for is receiving end-of-life care.

    End of life care Carer identity Bereavement Family caregivers Open access Peer-reviewed journal article
    View
  • Service systems, Carer support services

    1.8.2017

    Carer interventions

    Timothy Broady, Christina Aggar

    This article explores the effectiveness of interventions that are generally available for carers, including respite, counselling and education programs.

    Respite Carer education Counselling Carer wellbeing
    View
  • Income and paid work, Support at work

    1.10.2012

    Care to work?

    Bettina Cass, Trish Hill, Cathy Thomson

    This report by the Australian National University recognises that many women undertake caring responsibilities.

    Women Carer-inclusive workplaces Social connectedness Gender
    View
  • Recognition and inclusion, Carer recognition

    1.6.2017

    Revising social inclusion to take account of care

    Trish Hill, Cathy Thomson

    This article explores the social exclusion that carers may face, suggesting that current social inclusion assessments often overlook care or perceive it as solely a barrier to inclusion.

    Carer recognition Social connectedness Social policy Carer inclusion Social justice Peer-reviewed journal article
    View
  • Service systems, Carer support services

    4.8.2017

    Implementing a multi-modal support service model for the family caregivers of persons with age-related macular degeneration

    Bamini Gopinath, Ashley Craig, Annette Kifley, Gerald Liew, Jaye Bloffwitch, Kim Van Vu, Nichole Joachim, Robert Cummins, Julie Heraghty, Timothy Broady, Alison Hayes, Paul Mitchell

    This study investigated the experiences of individuals who care for persons with age-related macular degeneration and the need to provide tailored support to these carers.

    Age-related macular degeneration Family caregivers Support services Peer-reviewed journal article Open access
    View
  • Specific groups of carers, Young carers

    2.6.2010

    Children and young people as active agents in care-giving

    Ciara Smyth, Bettina Cass, Trish Hill

    This article provides an analysis of literature and primary research regarding young people who are informal carers.

    Young carers Education Flexible work Hidden carers Peer-reviewed journal article
    View
  • Specific groups of carers, Young carers

    1.8.2011

    Young carers

    Trish Hill, Cathy Thomson, Bettina Cass

    This article investigates the influence of location on young carers maintaining their education and employment.

    Young carers Education Employment Peer-reviewed journal article
    View
  • Income and paid work, Support at work

    30.11.2017

    Availability and use of supportive practices for employees with a non-work informal caregiving role

    Hugh Bainbridge, Timothy Broady

    This study aimed to investigate the effects of practices that can help employees combine work with unpaid care for family members who are frail due to old age or who have a disability.

    Carer-inclusive workplaces Workforce participation Flexible work
    View
  • Income and paid work, Career development

    30.11.2017

    Unpaid caregiving responsibilities and their impact on employees’ careers

    Hugh Bainbridge, Timothy Broady

    This publication explores the adverse career outcomes experiences by carers.

    Carer-inclusive workplaces Workforce participation
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.