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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

    FAQs
  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 475 results

  • Recognition and inclusion, Carer recognition

    1.11.2019

    Improving the identification of cancer patients’ caring relationships

    Sian White, Natalie Hart, Suzanne Lewis

    This article outlines the findings of a literature review and environmental scan of barriers to carer identification for cancer inpatients.

    Health care services Carer recognition Open access Peer-reviewed journal article
    View
  • Recognition and inclusion,

    1.3.2017

    Carer legislation, policy support initiatives and future implications

    Christina Aggar, Timothy Broady

    This report provides an overview of Australian carer legislation and policy initiatives to support carers.

    Policy Social policy Carer support Peer-reviewed journal article
    View
  • Recognition and inclusion, Carer recognition

    1.12.2016

    Carers and social inclusion

    Trish Hill, Cathy Thomson, Margaret Raven, Melissa Wong, Sue Yeandle, Lisa Buckner, Bettina Cass

    This report explores how the social inclusion of carers can be understood, measured and improved.

    Social connectedness Report Social isolation
    View
  • Caring and society, Carer statistics

    1.10.2018

    Carers NSW 2018 carer survey summary report

    Carers NSW

    The Carers NSW 2018 survey collected data about carers’ lived experience to inform employers, service provides, government, and the broader community about the ongoing needs of carers.

    Carer support Carer recognition Employment Survey Report
    View
  • Caring and society, Carer statistics

    1.10.2014

    Carers NSW 2014 carer survey report

    Carers NSW

    The 2014 Carers Survey provides insight into the experiences of carers in NSW with the aim of improving outcomes for carers.

    Carer support Carer wellbeing Financial wellbeing Employment Survey Report
    View
  • Recognition and inclusion, Carer recognition

    11.7.2019

    Claiming rights

    Kathryn Knight, Laura Davy

    This article explores the importance of meaningful recognition and inclusion of carers in their own right.

    Carer rights Carer support Financial wellbeing Disability Peer-reviewed journal article Open access
    View
  • Carer health and wellbeing, Prevention and early intervention

    1.8.2021

    Caring for others and yourself

    Carers Australia, University of Canberra

    This executive summary reports on the findings of the 2021 Carer Wellbeing Survey.

    Carer recognition Carer wellbeing Carer support Mental health Social connectedness Financial wellbeing Employment Carer burden Survey
    View
  • Recognition and inclusion, Inclusion in decision making

    1.3.2017

    Co-design of a carers strategy for New South Wales

    Helen McFarlane, Karen Turvey

    This article reports on the co-design of a statewide carers strategy in the Australian state of New South Wales.

    Open access Peer-reviewed journal article Strategy
    View
  • Service systems, Service changes

    1.6.2017

    Collateral damage

    Ara Cresswell

    This journal article examines the broad sector reforms within disability and aged care and their subsequent impact on carer support.

    Disability services Social welfare Carer support Support services NDIS Peer-reviewed journal article Open access
    View
  • Caring and society, Social value of caring

    27.3.2020

    Cultures of volunteer care?

    Charlotte Overgaard

    This article explores the cultural meanings of volunteer care in a comparative analysis of Australia and Denmark, with a focus on the development of their respective welfare systems.

    Culture Social welfare Peer-reviewed journal article
    View
  • Relationships and community, Family relationships

    9.4.2019

    Engaging the person with young-onset dementia

    Imelda Gilmore

    This article shares first-hand the lived experience of Imelda Gilmore who cared for her husband with young-onset Alzheimer’s disease.

    Dementia Carer recognition Lived experience Younger onset dementia Open access Peer-reviewed journal article
    View
  • Income and paid work, Career development

    1.3.2012

    Employment and informal care

    Michael Fine

    This article reports on the challenges for sustaining employment and care, and presents current and future opportunities that could be a solution to this.

    Employment Informal carers Flexible work Peer-reviewed journal article
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.