Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 11 results
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15.12.2017
Perceived needs of carers of people with psychosis
Abner Weng Cheong Poon, Lynette Joubert, Carol Harvey
This article takes a deeper look at the needs of carers for people with psychosis based on a series of semi-structured interviews with 98 carers recruited in the Australian prevalence study of psychosis.
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10.4.2018
A person-centred approach to family carer needs assessment and support in dementia community care in Western Australia
Samar Aoun, Chris Toye, Susan Slatyer, Andrew Robinson, Elizabeth Beattie
This study identifies the support needs of informal carers of people living with dementia through conducting qualitative research.
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3.9.2012
Some things change, some things stay the same
Afaf Girgis, Sylvie Lambert, Patrick McElduff, Billie Bonevski, Christophe Lecathelinais, Allison Boyes, Fiona Stacey
This publication provides longitudinal insight into the needs of cancer carergivers, finding that although many carers needs decreased over time, up to a third of carers surveyed still had unmet needs after 24 months.
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1.10.2021
Codesigning a supportive online resource for Australian cancer carers
Sharnel Miriam Perera, Clare O’Callaghan, Olinda Santin, Cassandra Beer, G Prue, Katherine Lane, Gerard G Hanna, Penelope Schofield, Anna Ugalde
This study aimed to assist in the co-design process of creating a website to provide information and support to cancer carers in Australia by collecting data on carers' experiences and perspectives.
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1.6.2023
Housing issues for people with disability, older people and carers in NSW
NSW Ageing and Disability Commission
This article is about the housing and homelessness crisis in NSW, Australia, with a specific focus on the challenges faced by older people, people with disabilities, and carers in regard to securing appropriate housing.
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20.12.2023
Person-centred integrated care for people living with Parkinson's, Huntington's and Multiple Sclerosis
Sandra Bartolomeu-Pires, Dorit Kunkel, Christopher Kipps, Nick Goodwin, Mari C. Portillo
This review aimed to research whether integrated care improves outcomes for people living with long term neurological conditions. In addition, this article also seeks to clarify what characterises successful interventions.
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12.9.2024
Development and Psychometric Evaluation of the Self-Care of Informal Caregivers Inventory
International Journal of Nursing Studies Advances
This study aimed to develop and validate a theory-based instrument, the Self-Care of Informal Caregivers Inventory, to measure self-care behaviors in three dimensions: maintenance, monitoring, and management.
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22.5.2024
Can cessation of caregiving for parents relieve family caregivers’ psychological distress?
Takashi Oshio, Ruru Ping
This article examines the mental health effects of caregiving cessation among family caregivers in Japan, using data from a 17-wave national survey of 8,280 individuals aged 50–59.
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17.10.2024
Adapting a Preparatory Skills-Building Programme for Carers of People With Cancer Through Co-Design: The iCanSupport Project
Existing programs often focus on mental health but overlook practical support for cancer carers. The iCanSupport project adapted existing programs using feedback from carers and healthcare professionals, making them more relevant to carers’ specific needs.