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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Carer wellbeing
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Your search has returned 85 results

  • Caring and society, Carer statistics

    1.10.2014

    Carers NSW 2014 carer survey report

    Carers NSW

    The 2014 Carers Survey provides insight into the experiences of carers in NSW with the aim of improving outcomes for carers.

    Carer support Carer wellbeing Financial wellbeing Employment Survey Report
    View
  • Carer health and wellbeing, Prevention and early intervention

    1.8.2021

    Caring for others and yourself

    Carers Australia, University of Canberra

    This executive summary reports on the findings of the 2021 Carer Wellbeing Survey.

    Carer recognition Carer wellbeing Carer support Mental health Social connectedness Financial wellbeing Employment Carer burden Survey
    View
  • Carer health and wellbeing, Wellbeing programs

    1.5.2018

    Making a world of difference for carers

    Fiona Burridge

    A paper detailing local programs designed in consort with local council, service providers and the local community to recognise carers and support their health and wellbeing.

    Carer support Carer wellbeing Health Carer recognition Open access Peer-reviewed journal article
    View
  • Income and paid work, Support at work

    1.5.2019

    Book review: The sandwich generation

    Timothy Broady

    This resource provides an overview of the book ‘The sandwich generation: Caring for oneself and others at home and at work’ by Ronald J. Burke and Lisa M. Calvino.

    Employment Policy Carer wellbeing Informal carers Book review
    View
  • Specific groups of carers, Caring for someone with dementia

    1.10.2018

    Interventions to support carers of people with dementia

    Steering Committee for the Review of Government Service Provision

    This review considers what works to support those caring for people with Dementia and explores the effectiveness of different intervention techniques to prolong a carer's capacity to maintain care.

    Dementia Carer wellbeing Carer recognition Home care
    View
  • Specific groups of carers, Caring for someone with cancer

    2.1.2019

    An economic evaluation of a telephone outcall intervention for informal carers of cancer patients in Australia

    Scott Richards-Jones, Cathrine Mihalopoulos, Leila Heckel, Kate M. Gunn, Marcus Tan, Patricia M. Livingston

    This study looks at the economic efficacy of proactive telephone outcall intervention as a method of improving health outcomes for carers of cancer patients.

    Carer wellbeing Cancer Mental health Economic modelling Peer-reviewed journal article
    View
  • Specific groups of carers, Rural and regional carers

    3.8.2020

    The impact of caregiving on the health status of regional carers in Australia

    Marie Hutchinson, John Hurley

    This article analyses the health and wellbeing of carers, specifically looking at the associated challenges of carers in regional Australia.

    Rural and regional Health Carer wellbeing NDIS Aboriginal and Torres Strait Islander Peer-reviewed journal article
    View
  • Carer health and wellbeing, Mental health

    1.4.2020

    Lifetime active care

    Laynie Hall Pullin, Heather McKenzie

    This article uses qualitative methods to explores the experiences of life-long carers caring for people with spinal cord injuries.

    Long-term carers Physical health Carer wellbeing Spinal cord injury Peer-reviewed journal article
    View
  • Caring and society, Social value of caring

    21.4.2020

    Caregiving work

    Aspa Sarris, Martha Augoustinos, Nicole Williams, Brooke Ferguson

    This article explores some of the major themes and experiences associated with caregiving.

    Carer wellbeing Informal carers Qualitative data Family caregivers Peer-reviewed journal article
    View
  • Specific groups of carers, Caring for someone with a serious illness

    22.1.2018

    Informal caregivers’ experiences of caring for people receiving dialysis

    Van Lan Hoang, Theresa Green, Ann Bonner

    This study focuses on the experiences of carers who care for someone with end stage kidney disease.

    Carer wellbeing Family caregivers End stage kidney disease Dialysis Carer burden Mental health Peer-reviewed journal article
    View
  • Carer health and wellbeing, Mental health

    6.3.2018

    Beyond using composite measures to analyze the effect of unmet supportive care needs on caregivers' anxiety and depression

    Sylvie Lambert, Nicholas Hulbert-Williams, Eric Belzile, Antonio Ciampi, Afaf Girgis

    This article provides an evidence-based evaluation of unmet carer needs most associated with anxiety and depression and provides a framework to guide the development of caregiver interventions.

    Mental health Carer wellbeing Carer support Peer-reviewed journal article
    View
  • Specific groups of carers, Caring for someone with cancer

    3.9.2012

    Some things change, some things stay the same

    Afaf Girgis, Sylvie Lambert, Patrick McElduff, Billie Bonevski, Christophe Lecathelinais, Allison Boyes, Fiona Stacey

    This publication provides longitudinal insight into the needs of cancer carergivers, finding that although many carers needs decreased over time, up to a third of carers surveyed still had unmet needs after 24 months.

    Carer wellbeing Cancer Carer needs Peer-reviewed journal article
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.