Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Evaluation

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Your search has returned 6 results

Specific groups of carers, Caring for someone with cancer

2.1.2019

An economic evaluation of a telephone outcall intervention for informal carers of cancer patients in Australia

Scott Richards-Jones, Cathrine Mihalopoulos, Leila Heckel, Kate M. Gunn, Marcus Tan, Patricia M. Livingston

This study looks at the economic efficacy of proactive telephone outcall intervention as a method of improving health outcomes for carers of cancer patients.

Carer wellbeing Cancer Mental health Economic modelling Peer-reviewed journal article

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Specific groups of carers, Caring for someone with cancer

31.12.2022

Red Bag evaluation

Redkite

This evaluation snapshot reports on the success of Redkite resources provided to children with cancer and their families through the 'Red Bag' program.

Cancer Children and young people Information 10 minute read

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Caring and society, Care costs

25.7.2020

Measuring carer outcomes in an economic evaluation

Lidia Engel, Stacey Rand, Renske Hoefman, Jessica Bucholc, Cathrine Mihalopoulos, Anne Muldowney, Nikki McCaffrey, Anna Ugalde

This study investigated the overlapping or complementary aspects of carer-related economic evaluation measures including the Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer), Carer Experience Scale (CES), and Care-Related Quality of Life (CarerQoL).

Carer support Peer-reviewed journal article Economic modelling

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Developing skills and knowledge, Caring skills

12.9.2024

Development and Psychometric Evaluation of the Self-Care of Informal Caregivers Inventory

International Journal of Nursing Studies Advances

This study aimed to develop and validate a theory-based instrument, the Self-Care of Informal Caregivers Inventory, to measure self-care behaviors in three dimensions: maintenance, monitoring, and management.

Carer wellbeing Carer needs Carer education

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Service systems, Aged care services

1.7.2024

Evaluation of the National Plan to Respond to the Abuse of Older Australians

Jade McEwen, Rachel Carson, Rae Kaspiew, John De Maio, Briony Horsfall, Bianca Brijnath, Peter Feldman, Rachel Muoio ,

Evaluation of Australia’s first National Plan to Respond to the Abuse of Older Australians (Elder Abuse)

Elder abuse Evaluation Aged care

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Carer health and wellbeing, Wellbeing programs

1.7.2023

Measuring What Matters:

Australian Government - The Treasury

This framework outlines Australia's approach to assessing wellbeing beyond GDP. It emphasises a holistic framework that incorporates non-economic indicators, such as social, environmental and accessibility opportunities.

Capacity building Evaluation Carer wellbeing

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