Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 21 results
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12.8.2018
Interacting with providers
Anna Green, Penelope Abbott, Patricia M. Davidson, Patricia Delaney, John Delaney, Patrick Patradoon-Ho, Michelle DiGiacomo
New research into Aboriginal carers’ experiences of accessing services and support for their child with a disability indicates a lack of cultural awareness and the presence of racism, with the authors arguing that a community-led approach can help counter intersectional oppression.
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31.12.2020
Carers information technology project
Ben Harris-Roxas, Jessica Harper
This research project was a qualitative research collaboration between the South Eastern Sydney Local Health District (SESLHD) and the South Eastern Research Collaboration Hub (SEaRCH) to establish the information needs of carers in NSW.
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3.12.2021
(How) Will it end?
Lukas Hofstaetter, Emma Kirby, Giselle Newton, Iva Strnadova, Christy E. Newman
Using a qualitative approach, this article explores the lived experiences of current and former carers, including carers’ concerns, opportunities and preferences for care endings, in order to gain insights that can be used to develop more effective pathways out of caring.
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11.1.2018
I just can't please them all and stay sane
Gemma Tatangelo, Marita McCabe, Ashley Macleod, Anastasia Konis
Examining the relationship between family dynamics and adult child caregiver distress, this study seeks to better understand the experience of caring for an older relative with dementia and address problematic family dynamics in the caring context.
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3.9.2011
Primary caregivers’ satisfaction with clinicians’ response to them as informal carers of young people with first-episode psychosis
Terence V McCann, Dan I Lubman, Eileen Clark
This article aims to explore carers’ experiences of mental health nurses and other mental health clinicians in regard to how they respond to them as carers of young people with first-episode psychosis.
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10.4.2018
A person-centred approach to family carer needs assessment and support in dementia community care in Western Australia
Samar Aoun, Chris Toye, Susan Slatyer, Andrew Robinson, Elizabeth Beattie
This study identifies the support needs of informal carers of people living with dementia through conducting qualitative research.
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1.12.2021
‘Sometimes they’re gammin, playing tricks, but sometimes it’s ears.’
Samantha F Harkus, Kylie AJ Caso, Sharron T Hall, Carmen Kung, Toni N Manton, Sarah J Murthy, Giselle AL Olive, Trumaine M Rankmore, Nikkita L Roberts, Meagan L Ward, Kelvin M Kong
This paper uses data from the Urban Hearing Pathways study to investigate avoidable hearing loss in young, urban Aboriginal and Torres Strait Islander children and their families.
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8.4.2013
Transitioning from caregiving to widowhood
Michelle DiGiacomo, Joanne M. Lewis, Marie T. Nolan, Jane Phillips, Patricia M. Davidson
This article examines the transition from caregiving to widowhood via the experiences of older women who take on caregiving roles for their husband at the end of life.