Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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Your search has returned 12 results

Recognition and inclusion, Carer recognition

1.12.2016

Carers and social inclusion

Trish Hill, Cathy Thomson, Margaret Raven, Melissa Wong, Sue Yeandle, Lisa Buckner, Bettina Cass

This report explores how the social inclusion of carers can be understood, measured and improved.

Social connectedness Report Social isolation

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Specific groups of carers, Aboriginal and Torres Strait Islander carers

1.5.2011

Indigenous carers

Bettina Cass, BJ Newton, Kylie Valentine, Trish Hill

This report provides an in-depth analysis of caring that examines experiences with support services for Indigenous and non-Indigenous carers. The report emphasises the need for more targeted research on numerous facets of Indigenous carer experiences and needs.

Aboriginal and Torres Strait Islander Disability Ageing Hidden carers Report

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Income and paid work, Support at work

1.1.2013

Investing in care

Myra Hamilton, Bettina Cass, Trish Hill, Cathy Thomson

This report provides a detailed account of the ways caring responsibilities can effect workplace participation, including strategies for employers to improve carer’s ability to manage caring and paid employment.

Carer recognition Carer-inclusive workplaces Workplace flexibility Financial wellbeing Superannuation Report

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Relationships and community, Social connection

1.1.2019

Understanding the social and emotional needs of carers

Trish Hill, Timothy Broady

This review provides an overview of key findings in the literature about ‘what works’ or effective programs to improve the social and emotional wellbeing of carers.

Social connectedness Social networks

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Service systems, Service changes

22.12.2016

The impact of caring on informal carers' employment, income and earnings

Michael Bittman, Trish Hill, Cathy Thomson

Noting the gradual shift from institutionalised forms of health and aged care into the home and community, this paper examines the effect on family and friend carers who are required to balance employment with emerging care responsibilities.

Financial hardship Employment Financial wellbeing Peer-reviewed journal article

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Income and paid work, Support at work

1.10.2012

Care to work?

Bettina Cass, Trish Hill, Cathy Thomson

This report by the Australian National University recognises that many women undertake caring responsibilities.

Women Carer-inclusive workplaces Social connectedness Gender

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Recognition and inclusion, Carer recognition

1.6.2017

Revising social inclusion to take account of care

Trish Hill, Cathy Thomson

This article explores the social exclusion that carers may face, suggesting that current social inclusion assessments often overlook care or perceive it as solely a barrier to inclusion.

Carer recognition Social connectedness Social policy Carer inclusion Social justice Peer-reviewed journal article

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Specific groups of carers, Young carers

20.10.2011

From assistance to prevention

Christiane Purcal, Myra Hamilton, Cathy Thomson, Bettina Cass

This article provides a structure for assessing the effectiveness of current support services for young carers in Australia.

Young carers Carer support Hidden carers Carer needs Peer-reviewed journal article

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Income and paid work, Retirement and superannuation

30.8.2016

Recognising unpaid care in private pension schemes

Myra Hamilton, Cathy Thomson

This article explores the inequality that many carers face regarding their retirement income due to an often interrupted workforce history.

Retirement Private pension schemes Financial literacy Financial wellbeing Open access Peer-reviewed journal article

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Specific groups of carers, Young carers

2.6.2010

Children and young people as active agents in care-giving

Ciara Smyth, Bettina Cass, Trish Hill

This article provides an analysis of literature and primary research regarding young people who are informal carers.

Young carers Education Flexible work Hidden carers Peer-reviewed journal article

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Specific groups of carers, Young carers

1.8.2011

Young carers

Trish Hill, Cathy Thomson, Bettina Cass

This article investigates the influence of location on young carers maintaining their education and employment.

Young carers Education Employment Peer-reviewed journal article

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Income and paid work, Financial hardship

1.1.2009

The costs of caring and the living standards of carers

Trish Hill, Cathy Thomson, Bettina Cass

In conjunction with the Australian Government Department of Families, Housing, Community Services and Indigenous Affairs the study looks at the economic patterns prevalent among carers.

Carer recognition Carer support Financial wellbeing Open access

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