Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
-
Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
My Research
Your Results
Filter my Results
Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 405 results
-
6.8.2012
Bounded agency in young carers' lifecourse-stage domains and transitions
Myra Hamilton,
This study investigated young carers experiences and perspectives, outlined the service needs of these carers, and investigated the impacts of their caring role on their education, employment, health, and social life.
-
20.1.2022
Looking beyond hours of care
Andreea Constantin, Myra Hamilton, Nate Zettna, Marian Baird, Daniel Dinale, Lisa Gulesserian, Alison Williams
This article explores the experiences of carers of a person with a disability when they withdraw from work, revealing that care strain can impact on all dimensions of paid employment.
-
4.2.2019
A systematic review of cancer caregiver interventions
Anna Ugalde, Cadeyrn J. Gaskin, Nicole M. Rankin, Penelope Schofield, Anna Boltong, Sanchia Aranda, Suzanne Chambers, Meinir Krishnasamy, Patricia M. Livingston
This article examined the potential for cancer caregiver interventions to be implemented in practice, revealing that there is much potential for future implementation of cancer caregiver interventions.
-
1.10.2021
Codesigning a supportive online resource for Australian cancer carers
Sharnel Miriam Perera, Clare O’Callaghan, Olinda Santin, Cassandra Beer, G Prue, Katherine Lane, Gerard G Hanna, Penelope Schofield, Anna Ugalde
This study aimed to assist in the co-design process of creating a website to provide information and support to cancer carers in Australia by collecting data on carers' experiences and perspectives.
-
25.7.2020
Measuring carer outcomes in an economic evaluation
Lidia Engel, Stacey Rand, Renske Hoefman, Jessica Bucholc, Cathrine Mihalopoulos, Anne Muldowney, Nikki McCaffrey, Anna Ugalde
This study investigated the overlapping or complementary aspects of carer-related economic evaluation measures including the Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer), Carer Experience Scale (CES), and Care-Related Quality of Life (CarerQoL).
-
1.11.2020
Head-to-head comparison of the psychometric properties of 3 carer-related preference-based instruments
Nikki McCaffrey, Jessica Bucholc, Stacey Rand, Renske Hoefman, Anna Ugalde, Anne Muldowney, Cathrine Mihalopoulos, Lidia Engel
This study investigated the measurement properties of preference-based instruments that aim to assess the impact of providing informal care on a carers social life and their caring experience.
-
21.12.2017
Predictors of long‐term distress in female partners of men diagnosed with prostate cancer
Melissa K. Hyde, Melissa Legg, Stefano Occhipinti, Stephen J. Lepore, Anna Ugalde, Leah Zajdlewicz, Kirstyn Laurie, Jeff Dunn, Suzanne K. Chambers
This study investigated the long term stress experienced by female carers of a partner with prostate cancer.