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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 486 results

  • Specific groups of carers, Young carers

    29.10.2024

    One in six young Australians in carer role

    Australian National University

    This article reports on a survey by the Australian National University found that over 16% of young Australians aged 16-17 years old care for someone with a long-term condition, with young male carers making up more than half of this group.

    Carer education Capacity building Carer support
    View
  • Carer health and wellbeing, Mental health

    1.11.2023

    The economy, our carers and Australians’ wellbeing

    Australian Unity

    This report presents the findings of the Australian Unity Wellbeing Index: Survey 40, which had a focus on informal and paid carers.

    View
  • Carer health and wellbeing, Mental health

    21.11.2023

    What is Real Wellbeing?

    Australian Unity

    This article highlights the findings of the 2023 Australian Unity Wellbeing Index report, based on a 22-year study into the wellbeing of Australians, conducted in partnership with Deakin University. The 2023 report had a focus on carers.

    Carer wellbeing Wellbeing Mental health
    View
  • Specific groups of carers, Caring for someone living with a mental illness

    18.5.2020

    Modes of Informed Caring

    Debra Klages, Leah East, Kim Usher

    Schizophrenia Mental health carers Mental health services
    View
  • Specific groups of carers, Aboriginal and Torres Strait Islander carers

    1.8.2023

    Stolenwealth: Examining the Expropriation of First Nations Women’s Unpaid Care

    Aboriginal and Torres Strait Islander Feminist research Discrimination
    View
  • Relationships and community, Social connection

    15.11.2024

    Voices of solitude

    COTA New South Wales

    This article highlights the significant prevalence and impact of loneliness and social isolation among older adults in New South Wales, with 60% experiencing loneliness and 50% facing social isolation.

    Social isolation Carer inclusion Older adults
    View
  • Recognition and inclusion, Carer recognition

    18.4.2024

    Beautiful but fragile

    Kath Sellick, Agnes Girdwood, Bronwyn Robinson, Lisa Romanin, Jennifer Davidson, Lorna Downes

    This study explored the experiences of family/carer Lived Experience (LE) workers in Victorian mental health services, focusing on how their personal caregiving experiences intersect with their roles and what is needed for sustainability.

    Mental health Carer wellbeing Carer inclusion Lived experience
    View
  • Carer health and wellbeing, Wellbeing programs

    31.5.2024

    The impact of caregiving on the roles and valued activities of stroke carers: A systematic review of qualitative studies

    Melissa Jammal , Gregory S Kolt, Karen P. Y. Liu, Nariman Dennaoui , Emma S. George

    This systematic review explores the experiences of informal caregivers of stroke survivors, focusing on how carers impacts their roles, activities, and overall wellbeing.

    Carer wellbeing Health care services Stroke Literature review
    View
  • Carer health and wellbeing, Wellbeing programs

    15.10.2024

    Healthcare professionals’ perceptions on providing support to informal carers within stroke care

    Melissa Jammal , Gregory S Kolt, Karen P. Y. Liu, Nariman Dennaoui , Emma S. George

    This article explores the perspectives of healthcare professionals on supporting informal carers of stroke survivors.

    Carer support Health care services Carer wellbeing Stroke
    View
  • Carer health and wellbeing, Wellbeing programs

    28.8.2024

    A systematic review and meta-analysis of randomized controlled trials to reduce burden, stress, and strain in informal stroke caregivers

    Melissa Jammal , Gregory S Kolt, Karen P. Y. Liu, Justin M Guagliano, Nariman Dennaoui , Emma S. George

    This systematic review and meta-analysis examines the effectiveness of interventions aimed at reducing burden, stress, and strain among informal stroke caregivers.

    Carer wellbeing Mental health Literature review Meta analysis
    View
  • Carer health and wellbeing, Carer wellbeing measures

    24.10.2024

    Delineating Care Recipient Burden Constructs

    Maja Kuharic, Brendan Mulhern, Lisa K Sharp, Robin S Turpin, A Simon Pickard

    The study developed the CARE-2B Scale to measure both the care recipient's view of their own burden (CR-SPB) and their assessment of the caregiver's burden (Proxy-CB).

    Carer burden Carer recognition USA Methodology
    View
  • Recognition and inclusion, Inclusion in decision making

    8.3.2011

    The Meaning of “Aging in Place” to Older People

    Janine L. Wiles, Annette Leibing, Nancy Guberman, Jeanne Reeve, Ruth E. S. Allen

    This study examines how older adults perceive the concept of “aging in place,” focusing on the functional, emotional, and symbolic meanings they associate with their homes, neighbourhoods, and communities.

    Ageing Carer identity Cultural safety New Zealand
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.