Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 423 results
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29.10.2024
One in six young Australians in carer role
Australian National University
This article reports on a survey by the Australian National University found that over 16% of young Australians aged 16-17 years old care for someone with a long-term condition, with young male carers making up more than half of this group.
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18.4.2024
Beautiful but fragile
Kath Sellick, Agnes Girdwood, Bronwyn Robinson, Lisa Romanin, Jennifer Davidson, Lorna Downes
This study explored the experiences of family/carer Lived Experience (LE) workers in Victorian mental health services, focusing on how their personal caregiving experiences intersect with their roles and what is needed for sustainability.
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31.5.2024
The impact of caregiving on the roles and valued activities of stroke carers: A systematic review of qualitative studies
Melissa Jammal , Gregory S Kolt, Karen P. Y. Liu, Nariman Dennaoui , Emma S. George
This systematic review explores the experiences of informal caregivers of stroke survivors, focusing on how carers impacts their roles, activities, and overall wellbeing.
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15.10.2024
Healthcare professionals’ perceptions on providing support to informal carers within stroke care
Melissa Jammal , Gregory S Kolt, Karen P. Y. Liu, Nariman Dennaoui , Emma S. George
This article explores the perspectives of healthcare professionals on supporting informal carers of stroke survivors.
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28.8.2024
A systematic review and meta-analysis of randomized controlled trials to reduce burden, stress, and strain in informal stroke caregivers
Melissa Jammal , Gregory S Kolt, Karen P. Y. Liu, Justin M Guagliano, Nariman Dennaoui , Emma S. George
This systematic review and meta-analysis examines the effectiveness of interventions aimed at reducing burden, stress, and strain among informal stroke caregivers.
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24.10.2024
Delineating Care Recipient Burden Constructs
Maja Kuharic, Brendan Mulhern, Lisa K Sharp, Robin S Turpin, A Simon Pickard
The study developed the CARE-2B Scale to measure both the care recipient's view of their own burden (CR-SPB) and their assessment of the caregiver's burden (Proxy-CB).
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8.3.2011
The Meaning of “Aging in Place” to Older People
Janine L. Wiles, Annette Leibing, Nancy Guberman, Jeanne Reeve, Ruth E. S. Allen
This study examines how older adults perceive the concept of “aging in place,” focusing on the functional, emotional, and symbolic meanings they associate with their homes, neighbourhoods, and communities.