Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 47 results
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24.2.2025
Middle-Aged Adults' Perspectives on Caregiving for Their Siblings With Intellectual and Developmental Disabilities
Se Kwang Hwang, Kyung Mee Kim, Chung Eun Lee
This study looks at how middle-aged siblings in South Korea take on the role of caring for a brother or sister with intellectual or intellectual disabilities.
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18.10.2024
The importance of recognition
Myra Hamilton, Hugh Bainbridge, Marian Baird, Nate Zettna, Lukas Hofstätter , Sarah Judd-Lam, Kate O’Loughlin
Carers frequently observe that their caring role is undervalued. This study provides new knowledge on the positive outcomes of carer recognition for carers’ social and emotional well-being and the sustainability of care relationships. Further, it provides evidence on how carer recognition mediates the relationship between adverse experiences of carers, and poor social and emotional outcomes. The findings suggest that reducing adverse experiences in employment, service navigation and social relationships are points of intervention for enhancing perceptions of recognition, and in turn, improving carer outcomes.
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29.9.2024
Co-Designing Caregiver Support Groups: Rapid Review with a Non-Profit Organization
Steven Hall, Erin Leeder, Leslie Macala, Jennifer White, Mikayla Hazel
This review aims to enhance evidence base on co-designing support groups for caregivers of older adults, focusing on their involvement in the co-design process.
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8.7.2024
Setting priorities for mental health family carer research and advocacy in Australia
This article reports on the recent priority agenda for mental health family carer research and advocacy developed by a new Australia-based network of stakeholders and researchers with lived and living experience of supporting someone experiencing mental distress.
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18.4.2024
Beautiful but fragile
Kath Sellick, Agnes Girdwood, Bronwyn Robinson, Lisa Romanin, Jennifer Davidson, Lorna Downes
This study explored the experiences of family/carer Lived Experience (LE) workers in Victorian mental health services, focusing on how their personal caregiving experiences intersect with their roles and what is needed for sustainability.
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27.3.2024
Recognising, valuing and supporting unpaid carers
Commonwealth of Australia
This report on the House of Representatives Standing Committee on Social Policy and Legal Affairs inquiry into the recognition of unpaid carers outlines the findings from 8 public hearings and 143 formal submissions throughout 2023.
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5.3.2024
Translating policy into practice by engaging older persons and their carers as co-researchers
Hannah Beks, Suzanne Clayden, Emma West, Olivia King, Laura Alston, Sue Williams, Alesha Sayner, Catherine Huggins, Kevin McNamara, Ellen Gaffy , Deeble Institute for Health Policy Research
This briefing calls for the greater involvement of older persons and their carers in participatory health research as 'co-researchers' to develop better solutions.