Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 161 results
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2.1.2019
An economic evaluation of a telephone outcall intervention for informal carers of cancer patients in Australia
Scott Richards-Jones, Cathrine Mihalopoulos, Leila Heckel, Kate M. Gunn, Marcus Tan, Patricia M. Livingston
This study looks at the economic efficacy of proactive telephone outcall intervention as a method of improving health outcomes for carers of cancer patients.
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1.1.2019
Family-focused care span
Michelle DiGiacomo, Slavica Kochovska, Phillipa Cahil, Claudia Virdun, Jane Phillips
This chapter introduces the concept of family-focussed palliative care and explains the different components of what patients and families perceive to be the most important aspects of end-of-life care.
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26.12.2018
Navigating the liminal space
Kristin Bindley, Anne May, Wendy Pavlek, Suzanne Coller, Pam Kalkandis, Trish Dalgleish
This article explores the lived experience of caregiving at the end-of-life by examining the physical, spiritual, social and psychological outcomes of carers during this time.
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1.10.2018
Interventions to support carers of people with dementia
Steering Committee for the Review of Government Service Provision
This review considers what works to support those caring for people with Dementia and explores the effectiveness of different intervention techniques to prolong a carer's capacity to maintain care.
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12.8.2018
Interacting with providers
Anna Green, Penelope Abbott, Patricia M. Davidson, Patricia Delaney, John Delaney, Patrick Patradoon-Ho, Michelle DiGiacomo
New research into Aboriginal carers’ experiences of accessing services and support for their child with a disability indicates a lack of cultural awareness and the presence of racism, with the authors arguing that a community-led approach can help counter intersectional oppression.
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12.5.2018
Mindfulness-integrated CBT (MiCBT) for reducing distress in parents of children with intellectual disability (ID)
Alice Shires, Raphaella Osborn, Mary Girgis, Stephanie Morse, Jovana Sladakovic, Ian Kneebone, Seeta Durvasula, Lynette Roberts
This examines ways in which Mindfulness-Integrated Cognitive Behavioural Therapy (MiCBT) can improve levels of distress in parents who care for a child with an intellectual disability.
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10.4.2018
A person-centred approach to family carer needs assessment and support in dementia community care in Western Australia
Samar Aoun, Chris Toye, Susan Slatyer, Andrew Robinson, Elizabeth Beattie
This study identifies the support needs of informal carers of people living with dementia through conducting qualitative research.
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24.1.2018
Carers' preferences for the delivery of therapy services for people with disability in rural Australia
Gisselle Gallego, Angela Dew, Anita Bundy, Kim Bulkeley, Jennie Brentnall, Craig Veitch
This study used a survey to better understand the needs and preferences of carers and care recipients regarding the delivery of therapy services.