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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 173 results

  • Specific groups of carers, Young carers

    8.8.2024

    A narrative review of community wellbeing programmes and the reported outcomes for young carers

    Jennifer Bibb, Samuel McMaster, Victoria J. Palmer

    This review aims to identify targeted community programmes that support the mental health and social wellbeing of young carers and their outcomes through the academic literature.

    Carer wellbeing Emotional support Young carers
    View
  • Specific groups of carers, Culturally and linguistically diverse carers

    19.6.2024

    Hidden care

    Renu Narchal, Rachel Hembrow

    The article examines the experiences of language brokers in Sydney, Australia, through interviews with 14 individuals from diverse ethnic backgrounds.

    Family interventions Health Wellbeing Migration Informal carers CALD
    View
  • Specific groups of carers, Culturally and linguistically diverse carers

    28.5.2024

    Patient Caregiver Perspectives on Accessing Language Interpretation in a Pediatric Emergency Department

    Emily A. Hartford, Nicholas Dimenstein, Barry Dwight , K. Casey Lion

    This article highlights the challenges faced by patients and caregivers who speak a language other than English (LOE) in pediatric emergency departments (ED).

    Carer rights Decision-making Health care CALD
    View
  • Specific groups of carers, Culturally and linguistically diverse carers

    20.5.2024

    Navigating multiple and complex systems of care and support with ageing family carers from multicultural backgrounds in Australia

    Nichole Georgeou

    This paper highlights the challenges faced by culturally and racially marginalised families face when seeking access to disability and aged care services and support.

    Cultural Responsiveness Support services Aged care
    View
  • Specific groups of carers, Caring for someone living with a mental illness

    11.3.2024

    Family members’ experiences of ‘living well’ with a family member with depression

    Amanda Cole, Julie Ann Pooley, Vivien Kemp, Lisa Whitehead

    The aim of this study was to explore how family members describe and perceive the experience of living well with a family member living with depression.

    Mental health Mental health carers Carer support
    View
  • Specific groups of carers, Young carers

    4.1.2024

    The effect of informal caring on mental health among adolescents and young adults in Australia

    Ludmila Fleitas Alfonzo, George Disney, Ankur Singh, Koen Simons, Tania King

    This study investigates how mental health changes over time among young people in different caregiving roles.

    Young carers Mental health Carer wellbeing Carer recognition
    View
  • Specific groups of carers, Aboriginal and Torres Strait Islander carers

    1.1.2024

    Face the Facts

    Australian Human Rights Commission

    This factsheet discusses the vital role Aboriginal and Torres Strait Islander women and girls play in cultural continuity as well as supporting the overall health and wellbeing of the community.

    Women Cultural Responsiveness Wellbeing Aboriginal and Torres Strait Islander
    View
  • Specific groups of carers, Aboriginal and Torres Strait Islander carers

    1.12.2023

    Caring about care

    Janet Hunt, Zoe Staines, Chay Brown, Kayla Glynn-Braun, Mandy Yap, Minda Murray, Bhiamie Williamson

    This report contributes to understandings of the scope of care work performed by Indigenous women.

    Aboriginal and Torres Strait Islander Policy Caregiving
    View
  • Specific groups of carers, Caring for someone with dementia

    11.10.2023

    Early-onset familial Alzheimer’s disease: do socio-demographic variables differentiate family caregivers on social support, self-efficacy and coping strategies?

    Maritza García-Toro, María Cruz Sánchez-Gómez, Ariana Castillo-Alzuguren , International Journal of care and caring

    Alzheimer’s Social networks Support groups
    View
  • Specific groups of carers, Caring for someone with disability

    1.10.2023

    Why are siblings important to achieving disability policy goals in Australia?

    This white paper outlines an evidence-based approach to understanding why siblings of people with disability should be considered a critical partner in achieving the priorities of Australia’s Disability Strategy 2021-2031.

    Disability Policy Family
    View
  • Specific groups of carers, Gender and sexuality diverse carers

    21.9.2023

    Disrupted Identities, Invisibility and Precarious Support

    Jane Ussher, Kimberley Allison, Samantha Ryan, Janette Perz , The Out with Cancer Study Team

    This study examined LGBTQI adolescents and young adults' (AYA) experiences of cancer and cancer care to understand existing health disparities.

    Cancer Health care services
    View
  • Specific groups of carers, Culturally and linguistically diverse carers

    1.9.2023

    Elder abuse in care relationships

    Ethnic Communities' Council of Victoria (ECCV)

    This paper looks at the challenges, learnings, and current gaps in practice related to the issue of elder abuse in care relationships where either the carer or care recipient is from a CALD background.

    CALD Cultural Responsiveness Elder abuse
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.