Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 405 results
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3.12.2021
(How) Will it end?
Lukas Hofstaetter, Emma Kirby, Giselle Newton, Iva Strnadova, Christy E. Newman
Using a qualitative approach, this article explores the lived experiences of current and former carers, including carers’ concerns, opportunities and preferences for care endings, in order to gain insights that can be used to develop more effective pathways out of caring.
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1.10.2018
Interventions to support carers of people with dementia
Steering Committee for the Review of Government Service Provision
This review considers what works to support those caring for people with Dementia and explores the effectiveness of different intervention techniques to prolong a carer's capacity to maintain care.
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22.12.2016
The impact of caring on informal carers' employment, income and earnings
Michael Bittman, Trish Hill, Cathy Thomson
Noting the gradual shift from institutionalised forms of health and aged care into the home and community, this paper examines the effect on family and friend carers who are required to balance employment with emerging care responsibilities.
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22.1.2018
Australian family carer responses when a loved one receives a diagnosis of Motor Neurone Disease
Margaret O'Connor, Samar Aoun, Lauren Breen
This paper describes the qualitative data from a large Australian survey of family carers of people with MND, to ascertain their experiences of receiving the diagnosis.
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11.1.2018
I just can't please them all and stay sane
Gemma Tatangelo, Marita McCabe, Ashley Macleod, Anastasia Konis
Examining the relationship between family dynamics and adult child caregiver distress, this study seeks to better understand the experience of caring for an older relative with dementia and address problematic family dynamics in the caring context.