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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 41 results

  • Caring and society, Caring during the COVID-19 pandemic

    22.2.2023

    COVID-19 experiences in Australia for people with MS and MS carers

    MS Australia

    This study explored the impact of COVID-19 on people living with MS and carers of people with MS.

    COVID-19 Lived experience Multiple sclerosis
    View
  • Caring and society, Caring during the COVID-19 pandemic

    1.2.2023

    Lessons learned during the COVID-19 pandemic

    Nous Group

    This report covers lessons learned by the Committee over the course of the COVID-19 pandemic.

    COVID-19 Pandemic Disability Health care services Lived experience
    View
  • Caring and society, Social value of caring

    7.11.2022

    The real cost to unpaid carers

    Jennifer Ervin, Tania King

    This news article discusses global informal unpaid caregiving, estimated to equal around 9% of the global GDP, contributing substantially to economic and healthcare systems.

    Care sector Economic modelling 5 minute read Mental health carers
    View
  • Caring and society, Caring during the COVID-19 pandemic

    23.9.2022

    Inequalities in caregiving strain during the COVID-19 pandemic

    Alina Schmitz, Nekehia T. Quashie, Melanie Wagner, Judith Kaschowitz

    This article explores the impact of the COVID-19 pandemic on informal carers, addressing inequalities in caregiving via a conceptual framework and review of the empirical evidence.

    COVID-19 Social policy Social welfare Gender inequality
    View
  • Caring and society, Caring during the COVID-19 pandemic

    1.9.2022

    Review of remote and online learning experiences during COVID-19

    Andrew Wade, Anne Walstab, Esther Doecke, Melissa Tham , Australian Education Research Organisation

    This report explores the effectiveness of online learning methods used during the COVID-19 pandemic to support student outcomes. The report also explores the experiences of remote learning for Australian families of students with a disability.

    Mental health Mental health carers Children and young people Education Higher education Open access
    View
  • Caring and society, Caring during the COVID-19 pandemic

    1.6.2022

    The impact of COVID-19 on carers

    International Alliance of Carer Organizations

    This report looks at how the unprecedented healthcare crisis brought on by COVID-19 has also forced carers to adjust to the rapidly changing situation.

    COVID-19 Carer stress Carer wellbeing
    View
  • Caring and society, Caring during the COVID-19 pandemic

    24.3.2022

    Carers Tasmania COVID impact survey 2022 results

    Carers Tasmania

    As borders reopen, Tasmanian carers continue to face adversity such as disruption, financial burden, isolation and immense stress as a result of the pandemic.

    COVID-19 Pandemic Survey Carer wellbeing 5 minute read
    View
  • Caring and society, Caring during the COVID-19 pandemic

    1.3.2022

    Overview of findings from the Victorian COVID-19 carer survey

    Carers Victoria Knowledge Centre

    Victorian COVID-19 carer survey data shows that carers have suffered serious consequences during the pandemic including poor mental health and wellbeing, social isolation, and loss of respite from their caring role.

    Carer wellbeing Pandemic COVID-19 10 minute read
    View
  • Caring and society, Caring during the COVID-19 pandemic

    1.2.2022

    Informal care in Australia during the COVID-19 pandemic

    Lukas Hofstaetter, Grace Cherrington

    While strong preventative measures helped Australia manage the COVID-19 pandemic better than most countries, many carers have been left more stressed, isolated and worse off financially.

    Informal carers COVID-19 Open access
    View
  • Caring and society, Caring during the COVID-19 pandemic

    13.1.2022

    Coronavirus (COVID-19) and carers

    Carers NSW

    This position statement outlines some of the difficulties carers have faced throughout the COVID-19 pandemic, drawing on policy and media analysis, carer case studies, and ongoing consultation with carers and other stakeholders.

    COVID-19 Carer wellbeing Support services Financial wellbeing 5 minute read Position paper
    View
  • Caring and society, Carer statistics

    1.1.2022

    2022 National Carer Survey Factsheets

    Carers NSW

    This resource provides access to a series of fact sheets and briefings outlining the preliminary results from the 2022 Carer Survey.

    Survey Carer wellbeing Carer identity
    View
  • Caring and society, Caring during the COVID-19 pandemic

    1.6.2021

    NSW carer support needs

    The University of Sydney Research Centre for Children & Families

    This report reviews the support needs of carers, including Aboriginal Kinship carers in the context of the COVID-19 pandemic.

    COVID-19 Aboriginal and Torres Strait Islander Carer support
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.