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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

    FAQs
  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 41 results

  • Caring and society, Social value of caring

    20.12.2016

    Factors to consider for motor neurone disease carer intervention research

    Cathy Gluyas, Susan Mathers, Nicole Hennessy Anderson, Anna Ugalde

    This article provides insight into the experiences of those who care for someone with motor neuron disease.

    Motor Neurone Disease Carer burden Carer recognition Peer-reviewed journal article
    View
  • Caring and society, Carer statistics

    1.10.2016

    Carers NSW 2016 carer survey

    Carers NSW

    The Carers NSW Carer Survey collects information about carers which is then used to guide the direction of the organisation and to facilitate systemic advocacy for carers.

    Survey Lived experience Work and care Carer wellbeing Report
    View
  • Caring and society, Economic value of caring

    1.3.2015

    Family caregiving

    Michelle DiGiacomo, Patricia M. Davidson

    This editorial explores multiple dimensions of the role of informal carers in health care and explores the physical, social, psychological, and financial implications of caregiving.

    Carer burden Family Open access
    View
  • Caring and society, Carer statistics

    1.10.2014

    Carers NSW 2014 carer survey report

    Carers NSW

    The 2014 Carers Survey provides insight into the experiences of carers in NSW with the aim of improving outcomes for carers.

    Carer support Carer wellbeing Financial wellbeing Employment Survey Report
    View
  • Caring and society, Carer statistics

    1.11.2012

    Carers NSW 2012 carer survey

    Carers NSW

    This report provides an overview of the 2012 Carer Survey conducted by Carers NSW.

    Carer wellbeing Respite Mental health services Survey
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.