Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 147 results
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16.12.2024
Young adults recount their experiences as young carers in Australia
Owen Walker, Richard Moulding, Jonathan Mason
This study explores the experiences of young carers, an often-overlooked group within Australian youth.
Findings reveal that providing care during childhood or adolescence is both challenging and transformative, with lasting effects into young adulthood. -
11.12.2024
Reforming the Carer Visa
, University of Sydney
The carer visa has been routinely criticised for its restrictive eligibility criteria, complex application process and lengthy processing times. A two-prong solution is proposed to address outstanding visa issues and, second, to create a new temporary visa stream. 5 recommendations are provided.
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29.10.2024
One in six young Australians in carer role
Australian National University
This article reports on a survey by the Australian National University found that over 16% of young Australians aged 16-17 years old care for someone with a long-term condition, with young male carers making up more than half of this group.
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28.10.2024
Generation Survey - What Young Australia Thinks
Ben Edwards, Kate Doery, Jessica Arnup, Intifar Chowdhury, Daniel Edwards, Kylie Hillman
The Generation Study is national study led by the Australian National University (ANU) where students are surveyed about to better understand contemporary experiences of young Australians both within the school environment and outside education. The ten-year study aims to capture trends about career interests and post-school plans.
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2.10.2024
A scoping review of barriers to accessing aged care services for older adults from culturally and linguistically diverse communities in Australia
Anthony Obinna Iwuagwu, Abner Weng Cheong Poon, Elizabeth Fernandez
The ageing population of culturally and linguistically diverse (CALD) individuals in Australia is growing due to the ageing of early migrants and increased family reunification. This scoping review examined research on barriers to aged care services for CALD older adults using the Access to Care Framework’s five dimensions: availability, accessibility, accommodation, affordability, and acceptability.
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1.9.2024
Integrating community and family aged care
Shuang Liu, Nancy A. Pachana, Kumchong Lee, Mary Ann Geronimo, Sunil Bhar
Based on the findings from 100 interviews with carer, we make six recommendations for service providers and policymakers in the aged care sector to consider implementing in practice and policymaking to support family carers of older CALD people and older CALD community in Australia.
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8.8.2024
A narrative review of community wellbeing programmes and the reported outcomes for young carers
Jennifer Bibb, Samuel McMaster, Victoria J. Palmer
This review aims to identify targeted community programmes that support the mental health and social wellbeing of young carers and their outcomes through the academic literature.
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28.5.2024
Patient Caregiver Perspectives on Accessing Language Interpretation in a Pediatric Emergency Department
Emily A. Hartford, Nicholas Dimenstein, Barry Dwight , K. Casey Lion
This article highlights the challenges faced by patients and caregivers who speak a language other than English (LOE) in pediatric emergency departments (ED).
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20.5.2024
Navigating multiple and complex systems of care and support with ageing family carers from multicultural backgrounds in Australia
Rohini Balram, Daniel Doh, Nichole Georgeou
This paper highlights the challenges faced by culturally and racially marginalised families face when seeking access to disability and aged care services and support.
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11.3.2024
Family members’ experiences of ‘living well’ with a family member with depression
Amanda Cole, Julie Ann Pooley, Vivien Kemp, Lisa Whitehead
The aim of this study was to explore how family members describe and perceive the experience of living well with a family member living with depression.