Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
-
Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
My Research
Your Results
Filter my Results
Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 160 results
-
24.3.2025
Structural stigma
Déborah Oliveira, Christine Musyimi , International Journal of care and caring
This article explores how deeply ingrained stigma in laws, policies, and systems creates unfair disadvantages for people caring for loved ones with dementia. It highlights that simply focusing on individual carers' wellbeing isn't enough.
-
24.2.2025
Middle-Aged Adults' Perspectives on Caregiving for Their Siblings With Intellectual and Developmental Disabilities
Se Kwang Hwang, Kyung Mee Kim, Chung Eun Lee
This article examines the experiences of middle-aged adults in South Korea who care for siblings with intellectual and developmental disabilities. It highlights the influence of 'filial piety', a cultural value that encourages family-based caring.
-
13.2.2025
Caring for people with dementia
Ruth Brookman, Ruby Lipson-Smith, Olivia Maurice, Nina Mcllwain, Lukas Hofstaetter, Michelle DiGiacomo, Danielle Ni Chróinín, Madeleine J Cannings, Celia B Harris
This study explores the experiences of family care partners of people with dementia, highlighting their unmet needs and barriers to support within healthcare and aged care systems.
-
6.2.2025
Transforming Aged Care for Aboriginal and Torres Strait Islander people
Department of Health and Aged Care (Australia)
This report highlights the failure of the aged care system to meet the needs of Aboriginal and Torres Strait Islander people, calling for urgent reforms to ensure equity in access and outcomes.
-
8.1.2025
Experiences of Caregiving and Service use Among Ethnic Migrant Older Adults and Their Caregivers in Western Countries
Anthony Obinna Iwuagwu, Abner Weng Cheong Poon, Elizabeth Fernandez
This article looks at the experiences of older people from ethnic minority backgrounds (aged 60 and over) and their caregivers in Western countries.
-
16.12.2024
Young adults recount their experiences as young carers in Australia
Owen Walker, Richard Moulding,
This study explores the experiences of young carers, an often-overlooked group within Australian youth.
Findings reveal that providing care during childhood or adolescence is both challenging and transformative, with lasting effects into young adulthood. -
11.12.2024
Reforming the Carer Visa
, University of Sydney
The carer visa has been routinely criticised for its restrictive eligibility criteria, complex application process and lengthy processing times. A two-prong solution is proposed to address outstanding visa issues and, second, to create a new temporary visa stream. 5 recommendations are provided.
-
29.10.2024
One in six young Australians in carer role
Australian National University
This article reports on a survey by the Australian National University found that over 16% of young Australians aged 16-17 years old care for someone with a long-term condition, with young male carers making up more than half of this group.
-
28.10.2024
Generation Survey - What Young Australia Thinks
Ben Edwards, Kate Doery, Jessica Arnup, Intifar Chowdhury, Daniel Edwards, Kylie Hillman
The Generation Study is national study led by the Australian National University (ANU) where students are surveyed about to better understand contemporary experiences of young Australians both within the school environment and outside education. The ten-year study aims to capture trends about career interests and post-school plans.