Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 405 results
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20.6.2023
Informal caregiving provision for disabled or elderly in the families and work productivity
Syed Afroz Keramat, Rubayyat Hashmi, Bolaji Samson Aregbeshola, Tracy Comans
This article looks at the relationship between informal caregiving and productivity loss in Australia, and how informal caregivers' productivity at work is affected by their caregiving responsibilities.
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6.7.2023
Prioritising carers’ health and wellbeing in the healthcare system
Natalie Winter, Rebecca Haddock
This brief discusses how carers' physical, mental, social, and financial status can be impacted by their caring role. Yet, limited support in the community is resulting in poor health and wellbeing outcomes for carers.
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1.1.2023
When caring ends: understanding and supporting informal care trajectories
Emma Kirby, Christy E. Newman, Brendan Churchill, Louisa Smith, Iva Strnadova
This report, part of a broader research program by the UNSW Centre for Social Research in Health aims to look at how, why, when, and for whom caring ends.
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1.1.2023
Caregiver fear of cancer recurrence
Phyllis Butow, Kyra Webb, Louise Sharpe, Haryana Dhillon, Robert Zachariae, Nina Moller Tauber, Mia Skytte O'Toole, Joanne Shaw
Although fear of cancer recurrence (FCR) is experienced by both cancer survivors and caregivers, less is known about caregiver FCR. This study compared survivor and caregiver FCR levels, as well as the relationship between caregiver FCR and depression/anxiety.
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1.2.2023
Disability and access to the NDIS in rural Australia
National Rural Health Alliance
This factsheet highlights how people with disability living in rural, regional and remote Australia experience challenges in accessing the support they need, with fewer providers and less workers available to deliver care.
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1.6.2023
Housing issues for people with disability, older people and carers in NSW
NSW Ageing and Disability Commission
This article is about the housing and homelessness crisis in NSW, Australia, with a specific focus on the challenges faced by older people, people with disabilities, and carers in regard to securing appropriate housing.