Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 405 results
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1.1.2023
Sociocultural factors associated with detection of autism among culturally and linguistically diverse communities in Australia
Aniqa Hussain
This study aimed to determine the sociocultural factors that are associated with the age and type of first concern reported by parents of autistic children among CALD communities in Australia.
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1.12.2023
Mission Australia Youth Survey 2023
Mission Australia
This report is the largest online annual survey of young people in Australia, with insights which are important for all those parenting and living alongside young people, teachers and school administrators, sector colleagues, support service staff, businesses and decision-makers.
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1.11.2024
Craftivism as inquiry: holding life's threads
Chloe Watfern, Gaynor Macdonald, Michele Elliot, Lynne Stone, Imelda Gilmore, Manuel Tecson, Najla Turk, Penny Bingham, Jane Mears, Ann Dadich, Barbara Doran, Katherine Boydell, Sarah Wallace
This article shares insights regarding an arts-based research project where carers of people with dementia conveyed their experiences in cloth.
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20.12.2023
Person-centred integrated care for people living with Parkinson's, Huntington's and Multiple Sclerosis
Sandra Bartolomeu-Pires, Dorit Kunkel, Christopher Kipps, Nick Goodwin, Mari C. Portillo
This review aimed to research whether integrated care improves outcomes for people living with long term neurological conditions. In addition, this article also seeks to clarify what characterises successful interventions.
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21.9.2023
Disrupted Identities, Invisibility and Precarious Support
Jane Ussher, Kimberley Allison, Samantha Ryan, Janette Perz , The Out with Cancer Study Team
This study examined LGBTQI adolescents and young adults' (AYA) experiences of cancer and cancer care to understand existing health disparities.