Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 405 results
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1.2.2024
Joint Standing Committee on the National Disability Insurance Scheme
Commonwealth of Australia
This General Issues report covers the implementation, performance, governance, administration and expenditure of the NDIS. Three key principles relating to the NDIS highlighted in the report were: choice and control; co-design; and sustainability.
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20.3.2024
Community-led policymaking charts a path through care crises
Sydney Policy Lab
Drawing from the Sydney Policy Lab's project 'Australia Cares', this article highlights how the recognition of diverse expertise and lived experience in policymaking is one step in addressing the crises in our care system.
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27.3.2024
Recognising, valuing and supporting unpaid carers
Commonwealth of Australia
This report on the House of Representatives Standing Committee on Social Policy and Legal Affairs inquiry into the recognition of unpaid carers outlines the findings from 8 public hearings and 143 formal submissions throughout 2023.
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9.12.2023
Caring for people with dementia from culturally and linguistically diverse backgrounds in nursing homes
Minah Amor Gaviola, Mieko Omura, Kerry Jill Inder, Amanda Johnson
This paper discusses care provision amongst people with dementia from culturally and linguistically diverse (CALD) backgrounds in nursing homes.
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7.11.2023
‘Everything would have gone a lot better if someone had listened to me’
Laura Hayes, Heather McIntyre, Mark Loughhead, Caroline Allen, Dean Barton-Smith, Brooke Bickley, Louis Vega, Jewels Smith, Ursula Wharton, Nicholas Procter
This study looks at Australians with a psychosocial disability (PSD) and a National Disability Insurance Scheme (NDIS), and their carers, and their access to emergency care due to their fluctuating conditions or when support has become insufficient.
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23.2.2021
What are the shared decision-making experiences of adult children in regard to their parent/s' health care in residential aged care facilities?
Ainslie Monson, Joyce Hendricks, Deborah Sundin
This paper looked at the shared decision-making (SDM) experiences of adult children in relation to their older parent's health care in residential aged care facilities (RACF).
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11.3.2024
Family members’ experiences of ‘living well’ with a family member with depression
Amanda Cole, Julie Ann Pooley, Vivien Kemp, Lisa Whitehead
The aim of this study was to explore how family members describe and perceive the experience of living well with a family member living with depression.
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24.8.2023
Factors associated with family carers' fall concern
Seng Giap Marcus Ang, Amanda Wilson, Rosemary Saunders, Chiew Jiat Rosalind Siah, Charlotte Foskett, Christopher Etherton-Beer, Karen Gullick, Melissa Dunham, Nicolette Sagaram, Rhea Rodriguez Tecson, Sue Haydon
This study explores family carers' fall concern of older people who are hospitalised.