Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
My Research
Your Results
Filter my Results
Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 405 results
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1.5.2023
The bereavement during COVID-19 study
Elizabeth A. Lobb, Fiona Maccallum, Serra Ivynian
This study examined the severe impact of Australia's strict COVID-19 public health measures on end-of-life care and bereavement practices. These measures, designed to reduce infection rates, led to isolation and disrupted support for families and friends of the deceased.
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19.8.2023
The National Disability Insurance Scheme and parenting support for families of children with developmental disability
Trevor G Mazzucchelli, Bruce J Tonge, Sharon Dawe, Avril V Brereton, Catherine Wade, Kirsten Baird-Bate
The article discusses the importance of providing parenting support for children with neurodevelopmental disabilities (including autism, intellectual disability and foetal alcohol spectrum disorder) under the Australian National Disability Insurance Scheme (NDIS).
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13.9.2023
A case for an extended unpaid carer leave entitlement?
Productivity Commission
This is the final report of the Productivity Commission inquiry into the economic and social impacts of allowing informal carers to take extended unpaid leave from their work to care for older people who are frail and living at home.
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Parent perspectives on School Can't: implications for health, welfare, disability and education
Louise Rogers, Tiffany Westphal
This report details the findings of a survey (conducted in December 2022 of 441 parents/carers who were supporting students who were experiencing school attendance difficulties.
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7.12.2023
Working together to deliver the NDIS
Independent Review of the National Disability Insurance Scheme
This final report of the independent review of the National Disability Insurance Scheme (NDIS) includes 26 recommendations with 139 actions to change the system that supports people with disability.