Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 63 results
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30.4.2025
Transportation: The Missing Link in Family Caregiver Support
National Aging and Disability Transportation Center, ARCH National Respite Network and Resource Center, ARCH National Respite Network and Resource Center
This resource provides information for caregiver support professionals about typical community transportation options and associated support services that could be used to support family caregivers in the US context.
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1.4.2025
Transportation
Jill Kagan , ARCH National Respite Network and Resource Center
This article offers guidance for professionals supporting caregivers, detailing common community transportation options and related services that can assist family caregivers. It highlights the critical role of transportation in enhancing the quality of life for care recipients and reducing caregiver burden
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12.1.2025
'I've heard of it but had nothing… not much to do with it'
Anne-Marie Mahoney, Samantha Clune, Linda McAuliffe, Jo Rayner, Deirdre Fetherstonhaugh , Australasian Journal on Ageing
This article explores the experiences of older people living in Australian residential aged care facilities (RACFs) and their families regarding the Resident of the Day (ROD) process.
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1.12.2024
Australian children with disabilities’ unmet support needs
Martin O'Flaherty, Jessica Hill, Jennifer Smith-Merry ,
This report highlights that 83% of children with disabilities in Australia have unmet support needs, with therapy, school-based support, and support workers being the most common.
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13.9.2024
Supporting Carers: Study Protocol of a Meta-Review of Psychosocial Interventions for Carers of People With Cancer
Lukas Hofstätter ,
Carers remain undersupported with a lack of dedicated, effective, evidence-based programs. We will conduct a meta-review to synthesize this evidence and determine the state of science in this field.
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11.9.2024
Empowering carers when systems are complex
Carers NSW, Carer Knowledge Exchange
The CKE Interactive Webinar 8 focused on empowering carers in complex systems and improving service access. This paper summarises the themes discussed at the webinar by panellists and by participants in breakout rooms.
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1.7.2024
Evaluation of the National Plan to Respond to the Abuse of Older Australians
Jade McEwen, Rachel Carson, Rae Kaspiew, John De Maio, Briony Horsfall, Bianca Brijnath, Peter Feldman, Rachel Muoio ,
Evaluation of Australia’s first National Plan to Respond to the Abuse of Older Australians (Elder Abuse)
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1.4.2024
Literature review on the abuse, neglect, and exploitation of adults with disability and older people by carers
Timothy Broady, Catherine Thomson, Ilan Katz, Sarah Judd-Lam
This literature review discusses the risk factors involved with neglect, abuse, and exploitation of older people and adults with disability.
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1.4.2024
Informing strategies to prevent abuse, neglect, and exploitation of adults with disability and older people by carers
Timothy Broady, Ilan Katz, Sarah Judd-Lam, Catherine Thomson
This report discusses alleged abuse, neglect, and exploitation of adults with disability and older people by carers.
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1.2.2024
Joint Standing Committee on the National Disability Insurance Scheme
Commonwealth of Australia
This General Issues report covers the implementation, performance, governance, administration and expenditure of the NDIS. Three key principles relating to the NDIS highlighted in the report were: choice and control; co-design; and sustainability.