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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 64 results

  • Service systems, Carer support services

    1.11.2018

    Hidden carers?

    Myra Hamilton, Jessica Botfield, Asha Persson, Christy E. Newman, Joanne Bryant, Kylie Valentine, Jack Wallace

    This article explores the experiences of those caring for people with HIV, recognising that there is a gap in carer research regarding the needs of this group of carers.

    Carer recognition Carer support Stigma Hidden carers HIV Peer-reviewed journal article
    View
  • Service systems, Disability services

    1.11.2018

    Underpricing care

    Natasha Cortis, Fiona Macdonald, Bob Davidson, Eleanor Bentham

    This article explores the role of NDIS pricing as a mechanism to manage the market model of care, and how low prices contribute to the undervaluing of care.

    NDIS Policy Disability services Peer-reviewed journal article Open access
    View
  • Service systems, Respite services

    1.10.2018

    Position paper: NDIS reasonable and necessary supports

    Carers Australia

    This paper makes a strong case towards the importance of respite for carers.

    NDIS Respite Carer wellbeing Position paper
    View
  • Service systems, Disability services

    24.9.2018

    Exploring the whole family experience living with younger onset dementia from a social model perspective

    Karen Hutchinson

    This research responds to gaps in understanding of people’s experiences of early onset dementia from a social model perspective.

    Dementia Disability Carer support Open access Thesis
    View
  • Service systems, Respite services

    1.2.2018

    Improving access to aged residential respite care

    Carers Australia

    Residential respite is an essential element of aged care, however, many are struggling to access this service and this report investigates why.

    Aged care Respite Access to care
    View
  • Service systems, Carer support services

    4.8.2017

    Implementing a multi-modal support service model for the family caregivers of persons with age-related macular degeneration

    Bamini Gopinath, Ashley Craig, Annette Kifley, Gerald Liew, Jaye Bloffwitch, Kim Van Vu, Nichole Joachim, Robert Cummins, Julie Heraghty, Timothy Broady, Alison Hayes, Paul Mitchell

    This study investigated the experiences of individuals who care for persons with age-related macular degeneration and the need to provide tailored support to these carers.

    Age-related macular degeneration Family caregivers Support services Peer-reviewed journal article Open access
    View
  • Service systems, Carer support services

    1.8.2017

    Carer interventions

    Timothy Broady, Christina Aggar

    This article explores the effectiveness of interventions that are generally available for carers, including respite, counselling and education programs.

    Respite Carer education Counselling Carer wellbeing
    View
  • Service systems, Service changes

    1.6.2017

    Collateral damage

    Ara Cresswell

    This journal article examines the broad sector reforms within disability and aged care and their subsequent impact on carer support.

    Disability services Social welfare Carer support Support services NDIS Peer-reviewed journal article Open access
    View
  • Service systems, Service changes

    22.12.2016

    The impact of caring on informal carers' employment, income and earnings

    Michael Bittman, Trish Hill, Cathy Thomson

    Noting the gradual shift from institutionalised forms of health and aged care into the home and community, this paper examines the effect on family and friend carers who are required to balance employment with emerging care responsibilities.

    Financial hardship Employment Financial wellbeing Peer-reviewed journal article
    View
  • Service systems, Disability services

    22.12.2016

    What is a person-centred approach?

    Timothy Broady

    This article reviews the person-centred approach to care within the disability sector in NSW.

    Disability services Carer recognition Carer education Person-centred Peer-reviewed journal article
    View
  • Service systems, Respite services

    1.10.2016

    National survey of carers respite needs

    Carers NSW

    This report reveals the findings of a survey conducted by Carers NSW to gain a greater understanding of carers' respite needs and experiences of using respite.

    Respite Carer wellbeing Survey
    View
  • Service systems, Disability services

    1.1.2016

    Individualized funding

    Hugh Bainbridge, Mandy Fong, Timothy Broady

    This article examines the relationship between individualised funding for people with disabilities and their caregiver’s experience in paid employment.

    Autism Employment Carer support Peer-reviewed journal article
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.