Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 63 results
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23.2.2021
What are the shared decision-making experiences of adult children in regard to their parent/s' health care in residential aged care facilities?
Ainslie Monson, Joyce Hendricks, Deborah Sundin
This paper looked at the shared decision-making (SDM) experiences of adult children in relation to their older parent's health care in residential aged care facilities (RACF).
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10.11.2020
Rethinking respite in Australia
Lyn Phillipson, Keryn Johnson, Elaine Fielding, Elizabeth Cridland, Danika Hall, Christine Neville, Helen Hasan
This article explores ways in which uptake of respite services can be improved among carers of people with dementia and reveals that more active support is needed to address carer decline, as opposed to passive respite information, which is often insufficient.
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10.8.2020
Post-traumatic growth: Health professionals as mothers of adult children with schizophrenia
Debra Klages, Leah East, Kim Usher, Debra Jackson
This paper describes how mothers as carers of adult children with schizophrenia experienced a complex traumatic process influenced by gender and the dominant ruling relations in healthcare. health professionals can play a central role in supporting mothers/carers in the care of their adult children with schizophrenia.
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14.5.2020
Navigating the marketisation of community aged care services in rural Australia
Suzanne Hodgkin, Pauline Savy, Samantha Clune, Anne-Marie Mahoney
This article examines the advantages and challenges of the Consumer Directed Care programme, in which approved organisations bid for government subsidies and compete to provide community-living aged care services accessed via My Aged Care.
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10.10.2019
“I’m trying to stop things before they happen”
Bronwen Merner, Sophie Hill, Michael Taylor
This study investigated carer involvement when a care recipient is in hospital. Specifically, the study looked at the experience of carers of adult patients and how they contributed to the safety of the care recipient while they were in hospital.
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1.11.2018
Hidden carers?
Myra Hamilton, Jessica Botfield, Asha Persson, Christy E. Newman, Joanne Bryant, Kylie Valentine, Jack Wallace
This article explores the experiences of those caring for people with HIV, recognising that there is a gap in carer research regarding the needs of this group of carers.